Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue |
| |
| Authors: | Donald J Willison Marilyn Swinton Lisa Schwartz Julia Abelson Cathy Charles David Northrup Ji Cheng Lehana Thabane |
| |
| Affiliation: | (1) Department of Clinical Epidemiology & Biostatistics, McMaster University, Hamilton, Canada;(2) Centre for Evaluation of Medicines, St. Joseph's Healthcare, Hamilton, Canada;(3) School of Nursing, McMaster University, Hamilton, Canada;(4) Department of Philosophy, McMaster University, Hamilton, Canada;(5) Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Canada;(6) Institute for Social Research, York University, Toronto, Canada;(7) Biostatistics Unit, St. Joseph's Healthcare, Hamilton, Canada |
| |
| Abstract: | ![]()
Background The role of consent for research use of health information is contentious. Most discussion has focused on when project-specific consent may be waived but, recently, a broader range of consent options has been entertained, including broad opt-in for multiple studies with restrictions and notification with opt-out. We sought to elicit public values in this matter and to work toward an agreement about a common approach to consent for use of personal information for health research through deliberative public dialogues. |
| |
| Keywords: | |
| 本文献已被 SpringerLink 等数据库收录！ |
|
