Illness perceptions and quality of life in families with child with atopic dermatitis |
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| Institution: | 1. Department of Speech and Language Therapy, School of Health Sciences, University of Ioannina, Ioannina, Greece;2. Department of Pediatrics, University Hospital of Ioannina, Ioannina, Greece;3. Faculty of Medicine, Paris Descartes University, Paris, France;4. Department of Primary Education, University of Ioannina, Ioannina, Greece;5. Faculty of Medicine, School of Health Sciences, University of Ioannina, Ioannina, Greece;1. School of Pharmacy, Lebanese International University, Beirut, Lebanon;2. Life sciences and health department, Paris-Est University, Paris, France;3. Faculty of Medicine and Medical Sciences, Holy Spirit University of Kaslik (USEK), Jounieh, Lebanon;4. INSPECT-LB: Institut National de Santé Publique, Epidémiologie Clinique et Toxicologie – Liban, Beirut, Lebanon;5. Drug Information Center, Order of Pharmacists of Lebanon, Beirut, Lebanon;6. Infectious Disease Department, Bellevue Medical center, Mansourieh, Lebanon;7. Infectious Disease Department, Notre-Dame Des Secours University Hospital, Byblos, Lebanon;8. Faculty of Pharmacy, Lebanese University, Beirut, Lebanon;9. Faculty of Medicine, Lebanese University, Beirut, Lebanon;1. Department of Allergy and Immunology, Ali Asghar children''s Hospital, Iran University of Medical Sciences, Tehran, Iran;2. Research Center of Pediatric Infectious Diseases, Institute of Immunology and Infectious Diseases, Iran University of Medical Sciences, Tehran, Iran;3. Department of Epidemiology, Faculty of Health, Iran University of Medical Sciences, Tehran, Iran;4. Research Center for Immunodeficiencies, Pediatrics Center of Excellence, Children''s Medical Center, Tehran University of Medical Science, Tehran, Iran;5. Network of Immunity in Infection, Malignancy and Autoimmunity (NIIMA), Universal Scientific Educationan and Research Netwrork (USERN), Tehran, Iran;1. Tehran Heart Center, Tehran University of Medical Sciences, Tehran, Iran;2. Department of Biology, Faculty of Basic Sciences, Maragheh University, Maragheh, Iran;3. Department of Veterinary Medicine, Shabestar Branch, Islamic Azad University, Shabestar, Iran;4. Department of Plant Protection, College of Agriculture, Ferdowsi University of Mashhad, Mashhad, Iran;5. Department of Immunology, School of Medicine, Zanjan University of Medical Sciences, Zanjan, Iran;1. Clinical Pathology Department, Faculty of Medicine, Zagazig University, Zagazig City, Al Sharqia Governorate, Egypt;2. Department of Medical Microbiology & Immunology, Faculty of Medicine, Zagazig University, Zagazig City, Al Sharqia Governorate, Egypt;3. Department of Pediatrics, Faculty of Medicine, Zagazig University, Zagazig City, Al Sharqia Governorate, Egypt |
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| Abstract: | ObjectiveTo assess the Quality of Life (QoL) of children with Atopic Dermatitis (AD) and their families and the impact of the mothers’ illness perceptions on the family QoL.Materials and methodsSeventy-five children with AD (54 infants and 21 children) and their mothers participated in the study. The following questionnaires were administrated: 1. Brief Illness Perception Questionnaire (Brief IPQ); 2. Infant's Dermatitis Quality of Life Index (IDQOL); 3. Children's Dermatology Life Quality Index (CDLQI); 4. Dermatitis Family Impact Questionnaire (DFIQ) and 5. The Severity Scoring of Atopic Dermatitis (SCORAD).ResultsAtopic dermatitis had a moderate impact on the QoL of the infants (6.67 ± 5.30), children (7.86 ± 7.19) and their families (9.42 ± 7.03). The DFIQ was associated with certain dimensions of the Brief IPQ, specifically, with Illness Identity (greater symptom burden) (r = 0.615, p = 0.000), beliefs about the Consequences of the illness (r = 0.542, p = 0.000), the Concerns (r = 0.421, p = 0.000) and the Emotional Representations (r = 0.510, p = 0.000). Correlation was demonstrated between IDQOL and DFIQ (r = 0.662, p = 0.000) and between CDLQI and DFIQ (r = 0.832, p = 0.000), and a weaker correlation between SCORAD and DFIQ (r = 0.255, p = 0.035). The chronicity of the AD showed negative association with DFIQ (p < 0.001).ConclusionsThe QoL of families with a child with AD is associated with the mother's illness perceptions about AD, the children's QoL and with both the severity and the chronicity of the disease. Therefore, clinicians should pay attention not only to the clinical characteristics of the children, but also to the parents’ beliefs and emotions, to improve the family QoL. |
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| Keywords: | Atopic dermatitis Children Illness perceptions Family quality of life Disease severity Chronicity |
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