Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL? 4.0 Generic Core Scales |
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| Authors: | James W Varni Christine A Limbers Tasha M Burwinkle |
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| Institution: | (1) Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, 3137 TAMU, College Station, 77843-3137, TX, USA;(2) Department of Psychology, College of Liberal Arts, Texas A&M University, College Station, 77843-3137, TX, USA;(3) The Children's Hospital at Scott & White, Department of Pediatrics, College of Medicine, Texas A&M University Health Science Center, 2401 South 31st Street, Temple, 76508, TX, USA |
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| Abstract: | Background Health-related quality of life (HRQOL) measurement has emerged as an important health outcome in clinical trials, clinical
practice improvement strategies, and healthcare services research and evaluation. While pediatric patient self-report should
be considered the standard for measuring perceived HRQOL, there are circumstances when children are too young, too cognitively
impaired, too ill or fatigued to complete a HRQOL instrument, and reliable and valid parent proxy-report instruments are needed
in such cases. Further, it is typically parents' perceptions of their children's HRQOL that influences healthcare utilization.
Data from the PedsQL™ DatabaseSM were utilized to test the reliability and validity of parent proxy-report at the individual age subgroup level for ages 2–16
years as recommended by recent FDA guidelines. |
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