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Key Learning Statements for Persistent Pain Education: An Iterative Analysis of Consumer,Clinician and Researcher Perspectives and Development of Public Messaging
Institution:2. Pain Revolution, Kaurna Country, University of South Australia, Adelaide, Australia;3. Centre for Impact, Neuroscience Research Australia, Sydney, Australia;4. Faculty of Medicine and Health, School of Health Sciences, University of New South Wales, Sydney, Australia;6. Lived experience advocate, Yorta Yorta Land, Australia;5. Rehabilitation Medicine Group, Boonwurrung Land, Melbourne, Australia;11. Brain Changer, Canberra, Australia;12. Parkway Health, Shanghai, China;8. Australian Capital Territory Pain Centre, Ngunnawal Country, Canberra, Australia;10. Persistent Pain Clinic, Shoalhaven District Memorial Hospital, Nowra, Australia;2. Michigan State University, Center for Neuromusculoskeletal Clinical Research, Department of Osteopathic Manipulative Medicine, College of Osteopathic Medicine, East Lansing, Michigan;2. Impact Community Pain Service, Midlands Partnership Foundation NHS Trust, Stoke-on-Trent, United Kingdom;3. Primary Care Centre Versus Arthritis, School of Medicine, Keele University, Newcastle, United Kingdom;6. Pain Service, Sandwell and West Birmingham Hospitals Trust, Birmingham, United Kingdom;5. School of Psychology, Queen''s University Belfast & the Centre for Chronic Pain Rehabilitation, Belfast Health and Social Care Trust Belfast, Belfast, Northern Ireland;2. Department of Pain Medicine, Klinikum Landsberg am Lech, Landsberg am Lech, Germany;3. TU Dresden- University Hospital Carl Gustav Carus, University Center of Orthopedics, Trauma and Plastic Surgery, Dresden, Germany;4. University of Potsdam, University Outpatient Clinic, Sports Medicine and Sports Orthopedics, Potsdam, Germany;6. University of Wuppertal, Department of Clinical Psychology and Psychotherapy, Wuppertal, Germany;5. Department of Orthopedics, University Medicine Rostock, Rostock, Germany;1. The Institute for Musculoskeletal Health, The University of Sydney and Sydney Local Health District, PO Box M179, Missenden Rd, NSW 2050, Sydney, Australia;2. The Faculty of Medicine, Health and Human Sciences Level 3, 75 Talavera Rd, Macquarie University, NSW 2109, Australia;2. Department of Community Dentistry and Behavioral Science, University of Florida, Gainesville, Florida;3. Pain Research and Intervention Center of Excellence, University of Florida, Gainesville, Florida;4. Department of Behavioral Nursing Science, University of Florida, Gainesville, Florida;5. Department of Anesthesiology, University of Florida, Gainesville, Florida;11. Department of Medicine, University of Florida, Gainesville, Florida;12. Department of Psychology, University of Alabama at Birmingham, Birmingham, Alabama;8. Department of Biostatistics, University of Alabama at Birmingham, Birmingham, Alabama;9. Department of Aging & Geriatric Research, University of Florida, Gainesville, Florida
Abstract:Over the last decade, the content, delivery and media of pain education have been adjusted in line with scientific discovery in pain and educational sciences, and in line with consumer perspectives. This paper describes a decade-long process of exploring consumer perspectives on pain science education concepts to inform clinician-derived educational updates (undertaken by the authors). Data were collected as part of a quality audit via a series of online surveys in which consent (non-specific) was obtained from consumers for their data to be used in published research. Consumers who presented for care for a persistent pain condition and were treated with a pain science education informed approach were invited to provide anonymous feedback about their current health status and pain journey experience 6, 12 or 18 months after initial assessment. Two-hundred eighteen consumers reported improvement in health status at follow-up. Results of the surveys from 3 cohorts of consumers that reported improvement were used to generate iterative versions of ‘Key Learning Statements’. Early iteration of these Key Learning Statements was used to inform the development of Target Concepts and associated community-targeted pain education resources for use in public health and health professional workforce capacity building initiatives.PerspectiveThis paper reflects an explicit interest in the insights of people who have been challenged by persistent pain and then recovered, to improve pain care. Identifying pain science concepts that consumers valued learning provided valuable information to inform resources for clinical interactions and community-targeted pain education campaigns.
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