Use of complementary and alternative medicine (CAM) treatments by parents of children with autism spectrum disorders |
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| Authors: | Lillian M. Christon Virginia H. Mackintosh Barbara J. Myers |
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| Affiliation: | 1. Virginia Commonwealth University, Department of Psychology, 806 West Franklin Street, PO Box 842018, Richmond, VA 23284-2018, United States;2. University of Mary Washington, Department of Psychology, 1301 College Avenue, Fredericksburg, VA 22401, United States;1. Division of Developmental & Behavioral Pediatrics, The Children’s Hospital of Philadelphia, Perelman School of Medicine, University of Pennsylvania, 3550 Market Street, 3rd Floor, Philadelphia, PA 19104, USA;2. Neurodevelopmental and Behavioral Pediatrics, Golisano Children''s Hospital, School of Medicine and Dentistry, University of Rochester School of Medicine and Dentistry, Rochester, NY 14642, USA;1. Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO, United States;2. Department of Psychiatry, University of Colorado School of Medicine, Aurora, CO, United States;3. Massachusetts General Hospital & Harvard Medical School, Department of Pediatrics, Boston, MA, United States;4. Department of Psychology, University of Massachusetts Boston, Boston, MA, United States;5. School of Education & Human Development, University of Colorado Denver, United States;6. Division of General Pediatrics, University of Southern California University Center for Excellence in Developmental Disabilities, Children’s Hospital Los Angeles, Los Angeles, CA, United States;7. Department of Pediatrics, Keck School of Medicine, University of Southern California, Los Angeles, CA, United States;8. Division of General Pediatrics, Oregon Health & Science University, Doernbecher Children’s Hospital, Portland, OR, United States;9. Oregon Health & Science University – Portland State University School of Public Health, Portland, OR, United States;1. Georgia State University, Division of Health Management and Policy, Atlanta, GA, USA;2. Kaiser Permanente Georgia, Center for Clinical and Outcomes Research, Atlanta, GA, USA;3. Department of Medicine, University of California San Francisco, San Francisco, CA, USA;4. The Center for Health Research/Northwest, Kaiser Permanente Northwest (KPNW), Portland, OR, USA;5. Department of Research and Evaluation, Kaiser Permanente Southern California (KPSC), Pasadena, CA, USA;6. Division of Research, Kaiser Permanente Northern California (KPNC), Oakland, CA, USA;1. Division of Health Sciences, Warwick Medical School, University of Warwick, Coventry CV4 7AL, UK;2. UTS, Sydney, NSW 2007, AUS;3. University of Southampton, Complementary and Integrated Medicine Research Unit, Primary Medical Care, Aldermoor Health Centre, Aldermoor Close, Southampton SO16 5ST, UK;1. School of Social and Behavioral Health Sciences, College of Public Health and Human Sciences, Oregon State University, 401 Waldo Hall, Corvallis, OR, 97331, United States;2. Division of General Pediatrics, Oregon Health & Science University, 707 SW Gaines Street, Portland, OR, 97239, United States;3. Department of Pediatrics, University of Colorado School of Medicine, 13121 E. 17th Ave, Aurora, CO 80045 United States;4. School of Public Health, OHSU-PSU, 3181 SW Sam Jackson Park Road; Portland, OR 97239, United States |
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| Abstract: | Parents of children with autism spectrum disorders (ASDs) may elect to use complementary and alternative medicine (CAM) treatments with their children in place of, or in addition to, conventional treatments. CAM treatments are controversial and understudied and, for most, the efficacy has not been established. The current study (n = 248) examined reports (via an internet survey) from parents of children with an ASD, asking of CAM usage, recommendation sources, expectations, costs, parent-rated assessments of efficacy, and reasons for stopping use of CAMs. Over 70% had tried at least one CAM treatment with their child, and about half were currently using one or more CAMs. Parents entered treatment with high expectations, although they varied considerably in their assessment of whether CAMs helped their child. Odds ratios of parent-rated efficacy give small leaning toward improvement over non-improvement for CAM treatments. The findings highlight the need for methodologically sound research on CAM treatments. Also needed is dissemination about treatment efficacy to help parents and professionals make educated judgments regarding both CAM and routine interventions. |
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