Balancing hope and despair at the end of life: The contribution of organ and tissue donation |
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Affiliation: | 1. University of Szeged, Faculty of Medicine, Department of Anaesthesiology and Intensive Therapy, Szeged, Hungary;2. University of Szeged, Faculty of Medicine, Division of Infectious Diseases, First Department of Internal Medicine, Szeged, Hungary;3. Semmelweis University, Faculty of Medicine, Department of Transplantation and Surgery, Budapest, Hungary;1. Royal Columbian Hospital, Vancouver BC, Canada;2. Division of Critical Care Medicine, University of British Columbia, Vancouver, BC, Canada;3. Faculty of Medicine, University of British Columbia, Vancouver, BC, Canada;4. Center for Health Evaluation and Outcome Sciences, St Paul''s Hospital and University of British Columbia, Vancouver, BC, Canada;5. Heart Centre, St Paul''s Hospital, Vancouver, BC, Canada;6. Vancouver General Hospital, Vancouver, BC, Canada;1. Department of Laboratory Medicine, Konventhospital Barmherzige Brueder Linz, Linz, Austria;2. Department of Internal Medicine, Konventhospital Barmherzige Brueder Linz, Linz, Austria;3. Institute for Applied System Sciences and Statistics, University of Linz, Linz, Austria;1. Department of Surgery, Duke University Medical Center, Durham, NC;2. Department of Respiratory Services, Duke University Medical Center, Durham, NC;3. Department of Anesthesia, Duke University Medical Center, Durham, NC |
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Abstract: | PurposeConcern for the grieving family can moderate the intentions of critical care staff to advocate deceased organ and tissue donation. Conversely, benevolent actions may provoke distress through missed opportunities to save or transform lives. This article provides insight into the perceived benefits of organ and tissue donation for grieving families who experienced end-of-life care in the intensive care unit.MethodsData were collected via semistructured, face-to-face or telephone interviews with 43 participants from 31 donor families. Audio recordings were transcribed verbatim and subjected to qualitative content analysis.ResultsThe study findings affirmed the importance of person-centered end-of-life care. Donor families shared examples of good-quality care and communication that contained the hallmarks of compassion, respect, dignity, and choice. We uncovered a trajectory of hope and despair in which the option of organ and tissue donation appeared to give meaning to the life and death of the deceased person and was comforting to some families in their bereavement.ConclusionsOur study findings underlined the significance of donation decision making for grieving families. Organ and tissue donation has the potential to balance hope and despair at the end of life when the wishes of the dying, deceased, and bereaved are fulfilled. |
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