A Practical Guide for Navigating the Design,Build, and Clinical Integration of Electronic Patient-Reported Outcomes in the Radiation Oncology Department |
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| Authors: | Rebecca G. Philipson Allan D. Wu William C. Curtis David J. Jablonsky John V. Hegde Susan A. McCloskey Tania B. Kaprealian Michael L. Steinberg Amar U. Kishan Ann C. Raldow |
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| Affiliation: | 1. Department of Radiation Oncology, University of California, Los Angeles, California;2. Department of Neurology, University of California, Los Angeles, California;3. UCLA Health Information Technology, University of California, Los Angeles, California;1. Department of Radiation Oncology, Beaumont Health, Royal Oak, Michigan;2. Department of Clinical Ethics, Beaumont Health, Royal Oak, Michigan;3. Department of Philosophy, Oakland University, Rochester, Michigan;4. Oakland University William Beaumont School of Medicine, Rochester, Michigan;5. Department of Medical Oncology, Beaumont Health, Royal Oak, Michigan;1. Department of Radiation Oncology, Rush University Medical Center, Chicago, Illinois;2. Department of Radiation Oncology, Karmanos Cancer Institute (Wayne State University) at McLaren Healthcare-Macomb/Clarkston/Oakland, Michigan;3. Department of Radiation Oncology, Kaiser Permanente, Atlanta, Georgia;1. Department of Radiation Oncology, Princess Alexandra Hospital (Ipswich Road), Brisbane, Australia;2. School of Medicine, University of Queensland, Brisbane, Australia;3. QCIF Facility for Advanced Bioinformatics, Institute for Molecular Bioscience, The University of Queensland, QLD, Australia;4. Cancer Trials Unit, Division of Cancer Services, Princess Alexandra Hospital, Brisbane, Australia;5. The University of Sydney, Faculty of Science, School of Psychology, Sydney Quality of Life Office, Sydney, Australia;6. The Sir Peter MacCallum Department of Oncology, Melbourne, Australia;7. The University of Melbourne, Melbourne, Australia;1. Department of Radiation Oncology, University of Texas Southwestern Medical Center, Dallas, Texas;2. Department of Biostatistics and Informatics, Mayo Clinic, Rochester, Minnesota;3. Department of Radiation Oncology, Mayo Clinic, Rochester, Minnesota;4. Department of Radiation Oncology, University of Texas MD Anderson Cancer Center, Houston, Texas;1. Harvard Medical School, Boston, Massachusetts;2. Dana-Farber Cancer Institute/Brigham and Women’s Hospital, Harvard Medical School, Boston, Massachusetts;3. Department of Radiation Oncology, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina;4. Geisel School of Medicine, Hanover, New Hampshire |
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| Abstract: | The development and integration of electronic patient-reported outcomes (ePROs) into the radiation oncology clinic workflow provide novel opportunities, accompanied by unique design considerations and implementation challenges. The processes required for implementation of ePROs are entirely distinct from standard paper-based surveys, with the majority of time devoted to conception and design before initiating questionnaire build, detailed workflow process mapping including development of new workflows, comprehensive communication of the vision between providers and the information technology team, and quality assurance. Based on our experience with implementation of ePROs in our radiation oncology department, we developed a stepwise framework for approaching ePRO conceptual design, build, workflow integration, and the electronic health record interface. Here, we provide a guide for the numerous considerations, decision points, and solutions associated with the implementation of ePROs in the radiation oncology department setting. Although various ePRO tools and electronic health record capabilities impose different requirements, opportunities, and limitations, the conceptual processes and many of the electronic build considerations are broadly applicable. |
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