Care Seeking for Pain in Young Adults with Sickle Cell Disease |
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| Affiliation: | 1. School of Nursing, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina;2. Duke Cancer Care Research Program, Duke Cancer Institute, Durham, North Carolina;3. Division of Hematology/Oncology, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina;1. Department of Anesthesiology, The Ottawa Hospital, University of Ottawa, Ottawa, Ontario, Canada;2. Department of Anesthesia, Sultan Qaboos University Hospital, Muscat, Oman;1. The Johns Hopkins School of Medicine, Baltimore, Maryland, USA;2. The Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA;3. The University of Maryland, Baltimore County, Baltimore, Maryland, USA;4. The Howard University Hospital, Washington, DC, USA;1. Emory University School of Medicine, Atlanta, Georgia;2. Seattle Children''s Research Institute, Seattle, Washington;3. Children''s National Medical Center, Washington, D.C;4. University of Colorado School of Medicine, Aurora, Colorado;5. Virginia Commonwealth University Health System, Richmond, Virginia;6. Connecticut Children''s Medical Center, Hartford, Connecticut;1. Department of Internal Medicine, Yale School of Medicine, New Haven, Connecticut, USA;2. Department of Psychiatry, Yale School of Medicine, New Haven, Connecticut, USA;1. School of Nursing, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina;2. Private Diagnostic Clinic PLLC, Duke Medicine, Durham, North Carolina;3. Duke University School of Nursing, Durham, North Carolina;4. Duke University Schools of Nursing and Medicine, Durham, North Carolina;1. Department of Medicine and Department of Pathology & Immunology, Washington University St. Louis, St. Louis, Missouri;2. Analysis Group, Inc., Boston, Massachusetts;3. Novartis Pharmaceuticals Corporation, East Hanover, New Jersey;4. Analysis Group, Inc., Montréal, Quebec, Canada |
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| Abstract: | In individuals with sickle cell disease (SCD), recognizing the cues to an acute pain episode and responding appropriately are important. The purpose of this mixed-methods pilot study is to identify preliminary factors that influence care seeking for pain in young adults with SCD. Responses were received from 69 young adults with SCD, age 18-35 years. The majority of respondents (88%) wait until the pain intensity is an average of 8.7 (± 1.2) on a scale of 1 to 10 before seeking care. Prominent themes influencing care seeking for pain include: trying to treat pain at home, avoiding the emergency department because of past treatment experiences, the desire to avoid admission to the hospital, and the importance of time in the lives of the young adults with SCD. Young adults with SCD need additional support from family and healthcare providers in order to make timely, appropriate decisions regarding care seeking. |
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