Communicating good care: A qualitative study of what people with urological cancer value in interactions with health care providers |
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| Institution: | 1. Health Services Research Unit, Health Sciences Building (3rd Floor), Medical School, University of Aberdeen, Foresterhill, Aberdeen AB25 2ZD, UK;2. Academic Urology Unit, University of Aberdeen, UK;1. Dermatology Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland;2. Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, National Institutes of Health, Bethesda, Maryland;1. London Southbank University, Faculty of Health & Social Care, LSBU, 103 Borough Rd, London SE1 0AA, United Kingdom;2. National Lung Cancer Forum for Nurses, Leeds Teaching Hospitals Leeds General Infirmary, Great George Street, Leeds LS1 3EX, United Kingdom;3. National Cancer Action Team, United Kingdom;1. University of Applied Arts and Sciences Western Switzerland, School of Health Fribourg, Route des Cliniques 15, CH 1700 Fribourg, Switzerland;2. Department of Medicine, University Hospital, 1002 Lausanne, Switzerland;3. University of Applied Arts and Sciences Western Switzerland, School of Health Fribourg, Switzerland;4. Department of Medicine and Medical Oncology, Hôpital Fribourgeois, 1708 Fribourg, Switzerland;5. Institut universitaire de formation et de recherche en soins–IUFRS, Faculté de biologie et de médecine, Université de Lausanne–UNIL, Switzerland;1. Respiratory Research Group, Aintree University Hospitals NHS Foundation Trust, Lower Lane, Liverpool, United Kingdom;2. Department of Musculoskeletal Biology, Faculty of Health and Life Sciences, University of Liverpool, Liverpool, United Kingdom;3. Liverpool Hope University, Hope Park, Liverpool, United Kingdom;4. Statistical Science, University College London, Torrington Place, London, United Kingdom;5. Integrative Physiology and Critical Illness Group, Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, University Road, Southampton, United Kingdom;6. Critical Care Research Area, Southampton NIHR Respiratory Biomedical Research Unit, Southampton, United Kingdom;7. Anaesthesia and Critical Care Research Unit, University Southampton NHS Foundation Trust, Southampton, United Kingdom;8. Cancer Sciences Division and Department of Medical Oncology, University Southampton NHS Foundation Trust, Southampton, United Kingdom;9. NIHR/CR-UK Experimental Cancer Medicine Centre, Southampton, United Kingdom |
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| Abstract: | PurposeCommunication with health care providers is important to help meet cancer patients' information and support needs. It can significantly affect the extent to which patients feel cared for, respected and involved, and it can influence a range of cancer care processes and outcomes. This paper presents findings from a study which explored urological cancer patients' experiences of care, focussing on insights into what they appeared to value in their interactions with health care providers and why.MethodIn-depth interviews were undertaken with 20 men and 6 women with different types of urological cancer at a range of times since diagnosis. Interviews were audio-recorded, transcribed and thematically analysed using an established interpretive approach.ResultsPatients valued being treated as someone who mattered and was worthy of care; being recognised and responded to as an individual; and experiencing support for autonomy/agency. Reasons for their valuations related to the implications of communicative interactions for the ways patients thought health professionals related to them ‘as persons’. Our findings highlight the value of relational aspects of communication for: indicating to patients what clinicians think of their worth; facilitating individualised care; and enabling patients to contribute to their own care.ConclusionsEfforts to improve health care provider-patient communication should attend not only to the transfer of information about the condition and its management but to the range of features of interactions that can signal to people how health care providers relate to them as persons. |
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| Keywords: | Cancer Communication Patient/person centred care |
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