Patient preferences for clinical follow-up after primary treatment for soft tissue sarcoma: A cross-sectional survey and discrete choice experiment |
| |
| Institution: | 1. Primary Care Clinical Sciences, School of Health and Population Sciences, University of Birmingham, Edgbaston, West Midlands B15 2TT, United Kingdom;2. Cancer Research UK Clinical Trials Unit and MRC Midland Hub for Trials Methodology Research, University of Birmingham, Edgbaston, West Midlands B15 2TT, United Kingdom;3. Health Economics Unit, School of Health and Population Sciences, University of Birmingham, Edgbaston, West Midlands B15 2TT, United Kingdom;4. Royal Orthopaedic Hospital NHS Foundation Trust, Bristol Road South, Northfield, Birmingham B31 2AP, United Kingdom;1. Department of Urology, Weill Cornell Medical College, New York-Presbyterian Hospital, New York, NY, USA;2. Department of Urology, University Hospital Basel, Basel, Switzerland;3. Department of Urology, Cochin Hospital, APHP, Paris Descartes University, Paris, France;4. Department of Urology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany;5. Department of Urology, AP-HP, Hopital Pitié-Salpétrière, Service d''Urologie, Paris, France;6. UPMC Univ. Paris 06, GRC5, ONCOTYPE-Uro, Institut Universitaire de Cancérologie, Paris, France;7. Division of Urologic Surgery and Center for Surgery and Public Health, Brigham and Women''s Hospital/Dana-Farber Cancer Institute, Harvard Medical School, Boston, MA, USA;8. Department of Urology, Medical University of Vienna, Vienna, Austria;9. Department of Surgical, Oncological and Gastroenterologic Sciences, Urology Clinic, University of Padua, Italy;10. Department of Urology, University of Texas Southwestern Medical Center, Dallas, TX, USA;11. Department of Urology, Hospital Universitario Puerta de Hierro-Majadahonda, Universidad Autónoma de Madrid, Madrid, Spain;12. Department of Urology, Kitasato University School of Medicine, Sagamihara, Kanagawa, Japan;13. Department of Urology, Landesklinikum Korneuburg, Korneuburg, Austria;14. Department of Urology, University of Montreal, Montreal, QC, Canada;15. Department of Urology, Vita-Salute University, Milan, Italy;1. Royal Victoria Hospital, Belfast BT12 6BA, Northern Ireland, United Kingdom;2. Altnagelvin Area Hospital, Derry BT47 6SB, Northern Ireland, United Kingdom;3. Liverpool Hepatobiliary Centre, University Hospital Aintree, Liverpool L9 7AL, United Kingdom;1. Department of Gastric Surgery, Liaoning Cancer Hospital & Institute, Shenyang, People''s Republic of China;2. Department of Radiology, Liaoning Cancer Hospital & Institute, Shenyang, People''s Republic of China;3. Center of Tumor Diagnosis and Therapy, The Second Workers Hospital of Liaohe Oil Field, Panjin, People''s Republic of China;1. Department of Surgery, Sungkyunkwan University School of Medicine, South Korea;2. Center for Clinical Trial, National Cancer Center, South Korea;3. Center for Gastric Cancer, National Cancer Center, South Korea;4. Department of Surgery, Chonnam National University Hwasoon Hospital, South Korea;1. Urology Service, Department of Surgery, Memorial Sloan-Kettering Cancer Center, New York, NY, USA;2. Department of Epidemiology and Biostatistics, Memorial Sloan-Kettering Cancer Center, New York, NY, USA;3. Division of Urologic Oncology, The Cancer Institute of New Jersey, USA |
| |
| Abstract: | BackgroundPatients treated for soft tissue sarcoma (STS) require long-term follow-up to detect recurrent or metastatic disease, yet marked differences exist in clinical approaches to the length of follow-up, frequency of consultations and investigations undertaken at follow-up visits. There has been no published work assessing patient expectations or the acceptability of post-treatment follow-up strategies. This study aimed to assess the patient acceptability of different follow-up strategies following curative surgery for soft tissue sarcoma and to investigate the hypothetical levels of recurrence risk at which different follow-up regimes were acceptable.MethodsPatients were recruited from the Royal Orthopaedic Hospital in Birmingham. The study used a cross-sectional survey incorporating a best-worst scaling discrete choice experiment to assess patient preferences regarding different aspects of follow-up.Results132 patients participated (47% response). The nature of investigations undertaken during follow-up was the most important aspect of post-surgical care. Patients typically preferred appointments routinely consisting of clinical examination and chest X-ray, and for follow-up to remain in secondary care rather than general practice.ConclusionClear protocols for STS patient follow-up can improve consistency and equity of care. In determining the optimum follow-up plan for STS patients from the patient perspective, this study provides valuable information that should be considered alongside the clinical effectiveness of follow-up strategies to maximise patient outcomes and use NHS resources appropriately. |
| |
| Keywords: | Soft tissue sarcoma Follow-up Secondary care Discrete choice experiment Best-worst scaling |
| 本文献已被 ScienceDirect 等数据库收录！ |
|
