Empowering patients for radiation therapy safety: Results of the EMPATHY study |
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| Institution: | 1. Hôpital européen Georges-Pompidou, Radiation Oncology Department, 20, rue Leblanc, 75015 Paris, France;2. Université Paris Descartes, 12, rue de l’École-de-Médecine, 75006 Paris, France;3. Maison de la recherche, Centre d’étude et de recherche travail organisation pouvoir (Certop), UMR 5044, 5, allée Antonio-Machado, 31058 Toulouse cedex 9, France;4. Centre de recherche sur le travail et le developpement (CRTD), Laboratoire d’ergonomie EA 4132, 41, rue Gay-Lussac, 75005 Paris, France;5. CNRS, Centre de recherche sur les liens sociaux (Cerlis), UMR 8070, 45, rue des Saints-Pères, 75270 Paris cedex 06, France;1. Department of Radiotherapy, Basavatarakam Indo-American Cancer Hospital and Research Institute, Hyderabad 500034, Telangana, India;2. Department of Radiological Physics, King George Medical University, Lucknow 226003, Uttar Pradesh, India;1. Department of Sciences of the Matter, Faculty of Science and Technology and Sciences of the Matter, Ibn Khaldoun University, Tiaret, Algeria;2. Department of Physics, Electronic Microscopy and Materials Sciences Laboratory (EMMSL), B.P.1505 El M''Naouar, Oran, Algeria;3. Centro de Desenvolvimento da Tecnologia Nuclear, Av. Antonio Carlos 6627, C.P. 941, 30161-970, Belo Horizonte, MG, Brazil;4. Institute of General and Inorganic Chemistry, Leninskii Prospect 31, 119991 Moscow, Russia;1. Graduate Program, Health and Rehabilitation Sciences, University of Western Ontario, London, ON, Canada;2. Department of Radiation Oncology and Supportive Care, London Regional Cancer Program, London Health Sciences Centre, London, ON, Canada;3. Department of Psychiatry, Faculty of Medicine, Psychiatry, University of Western Ontario, London, ON, Canada;1. University College London Hospitals NHS Foundation Trust, Department of Oncology, London, UK;2. University College London Hospitals NHS Foundation Trust, Department of Radiotherapy Physics, London, UK;3. University College London Hospitals NHS Foundation Trust, Institute of Nuclear Medicine, London, UK;1. Institute of Pharmacology and Toxicology, University of Veterinary Medicine, Vienna, Austria;;2. Clinical Division of Oncology, Department of Medicine I, Comprehensive Cancer Center, Medical University of Vienna, Vienna, Austria;3. Cell Division and Cancer Group, Molecular Oncology Programme, Centro Nacional de Investigaciones Oncológicas, Madrid, Spain;4. Research Institute of Molecular Pathology, Vienna, Austria;2. Radiation Oncology Unit, Fondazione di ricerca e cura “Giovanni Paolo II,” Università Cattolica del Sacro Cuore, Campobasso, Italy;3. Radiology Unit, Fondazione di ricerca e cura “Giovanni Paolo II,” Università Cattolica del Sacro Cuore, Campobasso, Italy;4. Physics Institute, Università Cattolica del Sacro Cuore, Rome, Italy |
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| Abstract: | PurposeWith the increase of treatment complexity, enhancing safety is a key concern in radiation oncology. Beyond the involvement of the healthcare professional, patient involvement and empowerment could play a major role in that setting. We explored how patients perceived and fulfilled that role during their radiation treatment.Materials and methodsA voluntary and anonymous questionnaire was administered to all patients treated in our department between November 2013 and May 2014. The following data were collected: sociodemographic profile; information received and initiatives to search for additional information; behavior when an unusual treatment event was perceived; active involvement in the safety of the treatment; nature and perception of their own involvement. A statistical analysis was performed to assess behavioral predictors.ResultsA total of 155 patients answered the survey. Most of them were treated for prostate (n = 58, 37.4%), lung (n = 27, 17.4%), head and neck (n = 26, 16.8%) and breast (n = 25, 16.1%). Only eight patients (5%) had previously received radiation therapy. Ninety-five percent of the patients estimated they had received enough information about their treatment, but 48% would have wanted more. When patients noticed an unusual event during their treatment session, most of them (61%) reported it to the radiation therapist.ConclusionPatient participation to radiation therapy safety should be encouraged to ensure a cooperative risk management. Healthcare professionals need to inform the patients on the basic technical processes involved in their treatment. Patient empowerment should be added to the verifications made by the radiation therapists and physicians but should not replace them. |
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| Keywords: | Patient safety Patient empowerment Radiation therapy Sécurité des soins Participation des patients |
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