Living through the death of a child: a qualitative study of bereaved parents' experiences |
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Authors: | Price Jayne Jordan Joanne Prior Lindsay Parkes Jackie |
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Institution: | aSchool of Nursing and Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, United Kingdom;bFormerly School of Nursing and Midwifery, Queen's University, Belfast, United Kingdom;cSchool of Sociology, Social Policy and Social Work, Queen's University, Belfast, United Kingdom |
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Abstract: | DesignCross-sectional qualitative study.Data sourcesInterviews with purposeful sample of 25 recently bereaved parents.MethodsSemi-structured in-depth interviews.ResultsFour analytically distinct processes were identified in the responses of parents to the death of a child. These are referred to as ‘piloting’, ‘providing’, ‘protecting’ and ‘preserving’. Regardless of individual circumstances, these processes were integral to all parents’ coping, enabling an active ‘doing’ for their child and family throughout the trajectory of their child's illness and into bereavement.ConclusionsFacilitating the capacity of parents to ‘do’ is central to coping with the stress and uncertainty of living through the death of a child. The provision of informational, instrumental and emotional support by health care professionals in the context of ‘doing’ is core to quality palliative care. |
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Keywords: | Bereaved parents Cancer Dying child End-of-life Palliative care Non-malignant |
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