Experiences,opinions and expectations of health care providers towards an intensive care unit follow-up clinic: Qualitative study and online survey |
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| Affiliation: | 1. Medical Sociology, Institute for Epidemiology and Preventive Medicine, University of Regensburg, Regensburg, Germany;2. Bavarian Care and Nursing Authority, Amberg, Germany;3. Department of Anesthesia & Operative Intensive Care, University Hospital Regensburg, Regensburg, Germany;4. University Children’s Hospital Regensburg (KUNO-Clinics), University of Regensburg, Regensburg, Germany;5. Institute of Social Medicine and Health Systems Research, Otto von Guericke University Magdeburg, Magdeburg, Germany;6. Department of Internal Medicine II, University Hospital Regensburg, Regensburg, Germany;7. Family Medicine and Primary Care, Lee Kong Chian School of Medicine, Nanyang Technological University Singapore, Singapore;1. Nuffield Department of Clinical Neurosciences, University of Oxford, Oxford, UK;2. Oxford University Hospital NHS Foundation Trust, UK;3. NIHR Biomedical Research Centre, Nuffield Department of Clinical Neurosciences, University of Oxford, Oxford, UK;1. National Center for Infection Prevention, Swissnoso, Bern, Switzerland;2. Infectious Diseases & Hospital Hygiene, Thurgau Hospital Group, Muensterlingen and Frauenfeld, Switzerland;3. Infection Control Programme, Geneva University Hospitals and Faculty of Medicine, WHO Collaborating Center for Patient Safety, Geneva, Switzerland;4. Department of Infectious Disease Epidemiology, Imperial College London, London, UK;1. Department of Pharmacy, AdventHealth Orlando, 601 East Rollins Street, Orlando, FL 32803, USA;2. Department of Pharmacy and Health Systems Sciences, Bouve College of Health Sciences, Northeastern University, 360 Huntington Ave, Boston, MA 02115, USA;3. Department of Nursing, AdventHealth Orlando, 601 East Rollins Street, Orlando, FL 32803, USA;4. Department of Surgery, AdventHealth Orlando, 601 East Rollins Street, Orlando, FL 32803, USA;5. Division of Pulmonary and Critical Care Medicine, Brigham and Women’s Hospital, 75 Francis Street, Boston, MA 02115, USA;1. Department of Anaesthesiology and Intensive Care, Aarhus University Hospital Skejby, Brendstrupgårdsvej 100, DK-8200 Aarhus N, Denmark;2. Aarhus University, Faculty of Health, Department of Clinical Medicine and Department of Public Health, Aarhus University Hospital, Nørrebrogade 44, Building 12A, DK-8000 Aarhus C, Denmark;3. Department of Anaesthesiology and Intensive Care, Aarhus University Hospital, Aarhus, Nørrebrogade 44, Building 21, DK-8000 Aarhus C, Denmark;4. University of Copenhagen, Health & Medical Sciences, Copenhagen University Hospital Rigshospitalet, Trauma Center HOC 3193, Blegdamsvej 9, DK-2100 Copenhagen O, Denmark;1. Division of Pulmonary and Critical Care Medicine, University of Michigan, 2800 Plymouth Rd, NCRC-14 G100-01, Ann Arbor, MI 48109, USA;2. Division of Rehabilitation Psychology and Neuropsychology, Department of Physical Medicine and Rehabilitation, University of Michigan, 325 E Eisenhower Parkway, Ann Arbor, MI 48108, USA;3. Division of Pulmonary and Critical Care Medicine, University of Michigan, 1500 East Medical Center Drive, 3920F Taubman Center, Ann Arbor, MI 48109, USA;1. Seoul Metropolitan Government Seoul National University Boramae Medical Center, South Korea;2. Chung-Ang University, South Korea |
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| Abstract: | ObjectivesIndependent of the underlying disease, intensive care unit survivors often suffer from cognitive, physical and mental impairments, also known as post-intensive care syndrome (PICS). Specific follow-up services are recommended for these patients. This study aims to capture the perspectives of health care providers on the development of the first intensive care unit follow-up-clinic in Germany.Research methodologyA qualitative study with six focus groups (n = 41) and six expert interviews, followed by a quantitative survey was conducted, involving nine different professions. Qualitative and quantitative data were analysed using thematic analysis and descriptive statistics, respectively.FindingsParticipants described aftercare of former intensive care unit patients as complex and appreciated the idea of an intensive care unit follow-up clinic to improve continuity of care and multidisciplinary collaboration. The favoured model combined diagnostics and targeted referral of patients to specialists and therapists with the provision of information. In the survey, participants disagreed on how to implement this referral system but agreed that assessments should be multidimensional.ConclusionThe necessity of and important criteria for the design of an intensive care unit follow-up clinic were identified. We will integrate these data with further evidence to develop a concept for a complex intervention. |
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| Keywords: | Care coordination Health care research Post-ICU care Qualitative interviews Quantitative online survey |
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