Profiles of Met and Unmet Needs in People with Dementia According to Caregivers’ Perspective: Results from a European Multicenter Study |
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| Institution: | 1. Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University, Maastricht, The Netherlands;2. Department of Neurobiology, Care sciences and Society, Karolinska Institutet, Stockholm, Sweden;3. CEDOC, Nova Medical School/Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisbon, Portugal;4. School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland;5. School of Psychology, Dublin City University, Dublin, Ireland;6. Martin Luther University Halle-Wittenberg, Medical Faculty, Institute of Health and Nursing Sciences, Halle, Germany;7. Nottingham University, Institute of Mental Health, Nottingham, United Kingdom;8. Norwegian National Advisory Unit on Aging and Health, Vestfold Hospital Trust, Tønsberg, Norway;9. Faculty om Medicine, University of Oslo, Oslo, Norway;10. Department of Geriatric Medicine, Oslo University Hospital, Oslo, Norway;11. IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Brescia;12. Dementia Services Development Center, Bangor University, Bangor, United Kingdom;13. Department of Health Services Research, CAPHRI School of Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands;14. Trimbos Institute, Netherlands Institute of Mental Health and Addiction, Center for Economic Evaluation Utrecht, the Netherlands;1. Division of Hospital Medicine, Department of Medicine, University of Colorado, Aurora, CO, USA;2. Veterans Health Administration, Eastern Colorado Health Care System, Denver-Seattle Center of Innovation for Veteran-Centered and Value Driven Care, Aurora, CO, USA;3. New Courtland Center for Transitions and Health, University of Pennsylvania School of Nursing, Philadelphia, PA, USA;4. Center for Home Care Policy & Research, Visiting Nurse Service of New York, New York, NY, USA;1. Section of Infectious Disease, Department of Medicine, University of Chicago, Chicago, IL, USA;2. Department of Medicine, Section of Geriatrics and Palliative Medicine, University of Chicago, Chicago, IL, USA;3. Center for Transformative Care, University of Chicago Medicine, Chicago, IL, USA;4. Department of Infection Control and Prevention, University of Chicago, Chicago, IL, USA;1. Department of Public Health Sciences, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA;2. Department of Psychiatry, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA |
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| Abstract: | ObjectivesThis exploratory study aimed at investigating profiles of care needs in people with mild to moderate dementia and examined variables associated with these profiles.DesignA longitudinal international cohort study.Setting and ParticipantsThe baseline data of 447 community-dwelling dyads of people with dementia and their caregivers from the Access to Timely Formal Care (Actifcare) Study were included for analysis.MethodsA latent class analysis was applied to identify profiles of needs, measured with the Camberwell Assessment of Need for the Elderly as rated by the caregiver. We examined sociodemographic (eg, relative stress scale) and clinical characteristics (eg, neuropsychiatric inventory) associated with these profiles.ResultsFour distinct need profiles were identified through latent class analysis. These comprised a “no need” profile (41% of the sample), a “met psychological needs” profile (25%), a “met social needs” profile (19%), and an “unmet social needs” profile (15%). A larger impact of caregiving on the caregiver's life as indicated by a higher relative stress scale score was associated with the “unmet social needs” profile.Conclusions and ImplicationsIn this large European sample, there was a subgroup of persons with dementia with high “unmet social needs” whose caregivers simultaneously perceived high stress in their caregiving tasks. Identification of these profiles may help provision of appropriate support for these people. |
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| Keywords: | Care needs CANE profiles latent class analysis dementia |
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