Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition期刊界 All Journals 搜尽天下杂志传播学术成果专业期刊搜索期刊信息化学术搜索

Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition

Authors:	Jeanette Wilburn Stephen P. McKenna Alice Heaney Matthew Rouse Michael Taylor Alison Culkin Simon Gabe Sorrel Burden Simon Lal

Affiliation:	1. Galen Research Ltd, Manchester M1 5BY, UK;2. School of Health Sciences, University of Manchester, Oxford Road, Manchester M13 9PL, UK;3. Intestinal Failure Unit (H8), Salford Royal NHS Foundation Trust, Salford M6 8HD, UK;4. Lennard Jones Intestinal Failure Unit, St Mark''s Hospital, Middlesex HA1 3UJ, UK

Abstract:

Keywords:	Home Parenteral Nutrition Intestinal Failure Type 3 Patient-centric Patient-reported outcome measure PNIQ Quality of life CDI Cognitive Debriefing Interviews DIF Differential Item Functioning IF Intestinal Failure HPN Home Parenteral Nutrition HPN-QoL Home Parenteral Nutrition-Quality of Life questionnaire HRQL Health-Related Quality of Life IQR Interquartile range NHP Nottingham Health Profile OBC Outcome Based Commissioning OBR Outcome based Reimbursement PROM Patient-Reported Outcome Measure PSI Person Separation Index QoL Quality of Life RUMM Rasch Unidimensional Measurement Model SBS-QoL Short Bowel Syndrome Quality of Life questionnaire SF-36 Short-Form 36 PNIQ Parenteral Nutrition Impact Questionnaire
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