AIDS and Hemophilia: Implications for Interventions with Families |
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| Authors: | Mason, Patrick J. Olson, Roberta A. Myers, Jennifer G. Huszti, Heather C. Kenning, Mary |
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| Affiliation: | Department of Pediatrics and Department of Psychiatry and Behavioral Sciences, University of Oklahoma Health Sciences Center, Department of Psychiatry and Behavioral Sciences, University of Oklahoma Health Sciences Center, Civil Aeromedical Institute, Federal Aviation Administration Oklahoma City, Oklahoma, Department of Pediatrics and Department of Psychiatry and Behavioral Sciences, University of Oklahoma Health Sciences Center, University of Nebraska 2All correspondence should sent to Patrick J. Mason, Department of Pediatrics, University of Oklahoma Health Sciences Center, Room 2B-265, P.O. Box 26901, Oklahoma City, Oklahoma 73190 |
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| Abstract: | Informational needs of hemophiliacs must first be assessed todevelop effective educational and prevention programs. A surveyof 132 hemophilia patients and family members was conductedto determine the information needs, the preferred source ofinformation and the patients' knowledge of AIDS. Results indicatedthat the major source of information for the patients was themedia; the preferred source was the hemophilia treatment center.Most patients wanted more information about the treatment ofAIDS and how to cope with the stresses of AIDS. Although patientsindicated that they had received sufficient information aboutthe sexual transmission of AIDS, answers to knowledge questionsindicated important misconceptions. Results are discussed withrespect to the development of educational and prevention programsfor hemophiliacs and their families. |
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| Keywords: | hemophilia AIDS families needs assessment. |
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