库车县维吾尔族女性艾滋病患者生存状况调查研究

目的：了解新疆库车县维吾尔族女性艾滋病患者生存质量、社会支持与歧视等情况，并分析影响维吾尔族女性艾滋病患者生存状况的因素，为改善其生存质量提供科学依据。方法采用匿名、自填问卷和访谈方式，对100例经新疆库车县疾病预防控制中心检验确诊为艾滋病感染者的维吾尔族女性患者（患病组）和社区同质未患艾滋病的维吾尔族女性100例（对照组）进行调查。结果患病组与对照组在文化程度、婚姻状况、职业及家庭月收入等方面差异有统计学意义（P ＜0．05）；年龄及医疗费用支付方式差异无统计学意义（P ＞0．05）。在 SF-36量表8个维度中，生理功能（PF）、社会功能（SF）、生理职能（RP）、躯体疼痛（BP）及情感职能（RE）5个维度差异有统计学意义（P ＜0．05），精神健康（MH）、生命活力（VT）、总体健康感（GH）3个维度差异无统计学意义（P ＞0．05）。SSRS量表中，主观支持、客观支持及对支持的利用度差异均有统计学意义（P ＜0．05）。艾滋病患者认为医疗机构存在歧视的占12．83％，侵犯隐私权的占2．25％，就业歧视的占2．43％，教育排斥的占0．50％，社会利益歧视的占13．67％，不存在侵犯知情同意权的情况。结论库车县维吾尔族女性艾滋病患者的生存质量、社会支持等方面均较正常女性差，存在着对女性艾滋病患者歧视的情况，她们更容易受到不公正地对待。减少社会对女性艾滋病感染者的社会歧视和改善女性艾滋病患者的生存质量对艾滋病的防治具有特别意义。

The survey on the living condition of Uyghur female patients with HIV/AIDS in Kuche of Xinj iang

Objective To compare the differences between healthy Uyghur female and female patients with HIV/AIDS through the quality of life,social support,and discrimination situation,and further to analyze the influencing factors of quality of life among female patients with HIV/AIDS so as to provide reliable and scientific foundation to improve the patients′quality of life.Methods 100 Uyghur female patients with HIV/AIDS diagnosed by the CDC and 100 healthy Uyghur female with the same basic condition but disease were surveyed by anonymous self-administered questionnaire and interview.Results The difference has statistical significance in education background,marriage status and profession （P 〈0.05）, meanwhile,not in age and payment way （P〉0.05）.For the SF-36 scale,5 dimensions which include PF, SF,RP,BP and RE show statistical significance （P〈0.05）,other 3,which are MF,VT and GH do not. For the SSRS scale,the subj ective and obj ective support dimension and the support application dimension have statistical significance （P〈0.05）.The patients consider the discrimination from medical agency takes upto 12.83%,and privacy invasion is up to 2.25%,discrimination in employment rates 2.43%,education exclusion is 0.5%,discrimination in community interests is 13.67%,and there is no infringement of in-formed consent.Conclusion The quality of life and social support of Uyghur female patients with HIV/AIDS are worse than the healthy Uyghur female in Kuche.The data reveal the existence of discrimination and unfairness.Based on the female security and health,to reduce the discrimination of HIV/AIDS and HIV/AIDS people,to improve the quality of life of the patients has significance in the prevention of HIV/AIDS.