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Quality of life assessments and levels of decision making: differentiating objectives
Authors:H J Sutherland  J E Till
Institution:(1) Division of Epidemiology and Statistics, Ontario Cancer Institute/Princess Margaret Hospital, 500 Sherbourne Street, M4X 1K9 Toronto, Ontario, Canada;(2) Centre for Bioethics, University of Toronto, Toronto, Canada;(3) Department of Medical Biophysics, University of Toronto, Toronto, Canada
Abstract:The purpose of this paper is to examine uses of quality of life (QOL) measurements at different levels of decision making within the health care system, ranging from the micro (clinical) level, through the meso (agency, institutional or regional) level to the macro and meta (governmental) levels. We use individualized, group and population-based QOL and preference assessments as illustrative examples of ways in which QOL information and decision making level interact. We conclude that the meso and macro levels pose particularly challenging problems, and suggest that, if the primary emphasis is placed on applications of QOL assessments at the micro (clinical) level of decision making, a research agenda that is much too limited may be adopted.Supported by a grant from the National Cancer Institute of Canada with funds from the Canadian Cancer Society.
Keywords:Decision making  preferences  health profiles  utility measurement  quality of life
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