先天性肛门直肠畸形患儿父母生活质量和社会支持研究进展

先天性肛门直肠畸形是一种常见的消化道畸形。手术治疗虽然挽救了患儿生命，但是术后肛门失禁、狭窄和便秘等并发症给患儿的身心健康带来严重影响。父母作为主要照顾者，既承担照顾患儿的繁重任务，又面临着沉重的经济和精神负担，成为亟待关注的群体。本文就先天性肛门直肠畸形患儿父母生活质量和社会支持的研究进展进行综述，以期为改善该人群生活质量提供参考依据。

Research progress on quality of life and social support among parents of children with congenital anorectal malformations

Congenital anorectal malformations are one of the most commonly observed congenital malformations of the digestive system.The surgical treatment has saved many children's lives.But the postoperative complications,including anal incontinence,stenosis,constipation,etc.caused serious damage to physical and mental health of children.Parents as primary caregivers,not only undertake heavy tasks of taking care of their children,but also bear economic and mental burden.Much more attention should be paid to them.This article summarizes the research progress on quality of life and social support among parents of children with anorectal malformations,which can provide evidence to improve the quality of life of the parents.