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Providers' assessment of transition readiness among adolescent and young adult kidney transplant recipients
Authors:Jordan Gilleland Marchak  Bonney Reed‐Knight  Sandra Amaral  Laura Mee  Ronald L. Blount
Affiliation:1. Aflac Cancer Center at Children's Healthcare of Atlanta, Atlanta, GA, USA;2. Department of Pediatrics, Emory University School of Medicine, Atlanta, GA, USA;3. Department of Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, PA, USA;4. Department of Epidemiology and Biostatistics, The University of Pennsylvania, Philadelphia, PA, USA;5. Department of Transplant Services at Children's Healthcare of Atlanta, Atlanta, GA, USA;6. Department of Psychiatry, Emory School of Medicine, Atlanta, GA, USA;7. Department of Psychology, University of Georgia, Athens, GA, USA
Abstract:The Readiness for Transition Questionnaire‐ provider version (RTQ‐Provider) was developed to evaluate adolescent patients' transition readiness and healthcare behaviors from the perspective of the healthcare provider. The RTQ‐Provider is a parallel version of the RTQ‐Teen and RTQ‐Parent completed by patients and parents. This study seeks to evaluate the psychometric properties of the RTQ‐Provider and its utility as a clinical transition planning tool. Participants consisted of 49 kidney transplant recipients between the ages of 15 and 21. The RTQ‐Provider was completed by the pediatric nephrologist and psychologist from the multidisciplinary healthcare team and compared to RTQ data from teens and parents. The RTQ‐Provider demonstrated good‐to‐excellent internal consistency and interrater reliability. Construct validity was supported through significant predictive relationships between providers' perceptions of transition readiness and older patient age, increased patient healthcare responsibility, and decreased parent involvement in health care. By providing parallel teen, parent, and provider forms, the RTQ has the potential to foster open communication between patients, families, and healthcare team members regarding transition readiness. The study provides initial support for the RTQ‐Provider as a clinical tool to assess providers' perceptions of transition readiness; however, future longitudinal research is needed to evaluate predictive validity following patients' transfer to adult care.
Keywords:organ transplants  transition  measures  assessment  adolescent and young adult  pediatric psychology
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