提高系统性红斑狼疮患者的生活质量初探

系统性红斑狼疮是一种典型的自身免疫性疾病，目前无根治的方法。笔认为，在对患的全面教育中，要教育患认识疾病，消除恐惧,保持乐观心情。在饮食起居中，劳逸结合、生活规律及饮食调节，外出避免紫外线直接照射。用药指导中，做好坚持长期用药的思想准备，不能随意减少药量及停药。利用家庭与社会的理解和支持，使患有一个良好的养病和生活环境。成立狼疮病友会，使患之间能相互交流治疗信息，相互安慰和鼓励。

How to Improve Life Quality of Patients with Systemic Lupus Erythematosus

Abstract: Systemic lupus erythematosus (SLE) is a typical autoimmune diseaes that can not becured presently. This study demonstrated that genealized nursing and persitent drug therapy are ef-fective for SLE treatment. The education program includes recognition of the diseaes, resolution oftrepidation and keeping optimism. The diet and activity should be controlled according to workwith proper rest and diet regulation, and avoiding sunlight. The drug advice involves keeping thedose and period of drug therapy. The family and society should care and support SLE patients togive a favourable surrounding. SLE sodality can make the patients get more intercommunication oftreatment consolidation and encouragement. In sum, the entirety of education, concern and backupis the key to improve the life quality,decreaes recurrene and mortality rates.