Patient knowledge and information-seeking about personalized cancer therapy |
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Affiliation: | 1. MRC/UVRI Uganda Research Unit on AIDS, Entebbe, Uganda;2. MRC Clinical Trials Unit at University College London, UK;3. London School of Hygiene and Tropical Medicine, London, UK;4. School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa |
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Abstract: | BackgroundUnderstanding patients’ knowledge and prior information-seeking regarding personalized cancer therapy (PCT) may inform future patient information systems, consent for molecular testing and PCT protocols. We evaluated breast cancer patients’ knowledge and information-seeking behaviors regarding PCT.MethodsNewly registered female breast cancer patients (n = 100) at a comprehensive cancer center completed a self-administered questionnaire prior to their first clinic visit.ResultsKnowledge regarding cancer genetics and PCT was moderate (mean 8.7 ± 3.8 questions correct out of 16). A minority of patients (27%) indicated that they had sought information regarding PCT. Higher education (p = 0.009) and income levels (p = 0.04) were associated with higher knowledge scores and with seeking PCT information (p = 0.04). Knowledge was not associated with willingness to participate in PCT research.ConclusionEducational background and financial status impact patient knowledge as well as information-seeking behavior. For most patients, clinicians are likely to be patients’ initial source of information about PCT. Understanding patients’ knowledge deficits at presentation may help inform patient education efforts. |
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Keywords: | Patient knowledge Information-seeking behavior Patient attitudes Molecular testing Personalized cancer therapy |
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