终末期病人配偶照顾者体验质性研究的Meta整合

目的 系统总结终末期病人配偶体验的质性研究,为构建基于配偶体验的支持方案提供依据。方法 计算机检索PubMed、The Cochrane Library、Web of Science、MEDLINE、EMbase、中国知网、CBM、万方数据库、VIP数据库,搜集有关终末期患者配偶照顾者体验的质性研究,检索时限为建库至2020年1月。采用澳大利亚JBI循证卫生保健中心质性研究质量评价标准（2017版）评价文献质量,使用Nvivo 11软件通过汇集性整合的方法进行结果整合。结果 共纳入12项研究,提炼出14个明确的研究结果,将相似的研究结果归纳形成8个新类别,得出2个整合结果。整合结果1：配偶照顾病人时的资源、动机、行为、感受和困境;整合结果2：病人死亡临近对夫妻关系、配偶的态度和感受的影响。结论 配偶在照顾终末期病人时有丰富的体验,专业人员应关注配偶的积极体验、夫妻关系变化和面对死亡时的态度;促进配偶与相同处境的人共享经验、增加与病人的沟通。

Qualitative Research on Experience of Spouse of End-of-life Patients: A Meta-synthesis

Objective To systematically review the qualitative research on experience of end-of-life (EOL) of patients' spouse, to provide evidence for constructing support programs based on spouses' experience. Methods We searched databases in both English and Chinese, including PubMed, The Cochrane Library, Web of Science, MEDLINE, EMbase, CNKI, CMB, Wanfang Data and VIP from the inception to January 2020, to collect qualitative studies on the experience of the spouse of EOL patients. The quality of included studies was evaluated according to JBI Critical Appraisal Tool for qualitative studies (2017 edition) in Australia. The results were integrated by using Nvivo 11 software. Results A total of 12 studies were included, and 14 complete findings were grouped according to their similarities to form 8 categories., which resulted in 2 synthesized findings: (1) resources, motivations, behaviors, feelings, and dilemmas of spouses in caring for patients;(2) effects of the proximity of patients' death on marital relationships, spouses' attitudes, and feelings. Conclusion Spouses have rich experiences in caring for EOL patients. Professionals should pay attention to the positive experiences of the spouses, changes in marital relationship and their attitudes towards death; encourage spouses to share experiences among spouses in the same situation; and promote their communication with patients.