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Lived experience researchers partnering with consumers and carers to improve mental health research: Reflections from an Australian initiative
Authors:Michelle Banfield PhD  Rebecca Randall BSc   BSc  Mearon O'Brien BPubHlth  Sophie Hope BSc   GradCert  Amelia Gulliver PhD  Owen Forbes BSc   BA  Alyssa R. Morse BPsych  Kathleen Griffiths PhD
Affiliation:1. ACACIA: The ACT Consumer and Carer Mental Health Research Unit, Centre for Mental Health Research, The Australian National University, Acton, Australian Capital Territory, Australia;2. Research School of Psychology, The Australian National University, Acton, Australian Capital Territory, Australia
Abstract:Consumer and carer involvement in mental health research is a growing and developing field. Whilst there has been policy and in‐principle support for such involvement from governments around the world, lived experience researchers conducting academic research in partnership with other consumers and carers remains uncommon. ACACIA: The Australian Capital Territory Consumer and Carer Mental Health Research Unit is based at The Australian National University and employs academic researchers with lived experience to undertake research directly relevant to the needs of mental health consumers and carers with the aim of influencing policy and practice. In this study, we share our experience of developing and conducting research within ACACIA to provide a model for meaningfully engaging mental health consumers and carers throughout the research process.
Keywords:carer involvement  consumer involvement  consumer‐led research  lived experience  research partnership
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