Internet-delivered psychoeducation for older adolescents and young adults with autism spectrum disorder (SCOPE): An open feasibility study |
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| Affiliation: | 1. Center of Neurodevelopmental Disorders (KIND), Division of Neuropsychiatry, Department of Women’s and Children’s Health, Gävlegatan 12b, Karolinska Institutet, Stockholm, Sweden;2. Habilitation & Health, Tideliusgatan 12, Stockholm County Council, Stockholm, Sweden;3. Child and Adolescent Psychiatry, Center for Psychiatry Research, Gävlegatan 12b, Stockholm County Council, Stockholm, Sweden;1. Department of Biomedical Engineering, Rensselaer Polytechnic Institute, Troy, NY, USA;2. Department of Computer Science, Rensselaer Polytechnic Institute, Troy, NY, USA;3. Autism/Asperger’s Research Program, Arizona State University, Tempe, AZ, USA;4. Department of Chemical and Biological Engineering, Rensselaer Polytechnic Institute, Troy, NY, USA;1. Department of Maternal and Child Health and MOE Key Lab. of Environment and Health, School of Public Health, Tongji Medical College, Huazhong University of Science and Technology, Wuhan 430030, China;2. Maternity and Children Health Care Hospital of Luohu District, Shenzhen 518019, China;3. Department of Epidemiology and Biostatistics, Arnold School of Public Health, University of South Carolina, Columbia, SC 29208, USA;1. Department of Clinical, Neuro and Developmental Psychology, Vrije Universiteit Amsterdam, The Netherlands;2. Department of Biological Psychology, Vrije Universiteit Amsterdam, The Netherlands;3. EMGO+ Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands;4. Neuroscience Campus Amsterdam, Amsterdam, The Netherlands;1. Bristol Randomised Trials Collaboration, Bristol Trials Centre, Population Health Sciences, Bristol Medical School, University of Bristol, UK;2. Department of Psychology, University of Bath, UK;3. Autism Assessment Team, Tees, Esk and Wear Valleys NHS Foundation Trust, UK;4. Gwent Child and Family Psychology and Therapies Service, Aneurin Bevan University Health Board, UK;1. Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, CA, United States;2. Sierra Pacific Mental Illness Research, Education and Clinical Center (MIRECC), VA Palo Alto Health Care System, Palo Alto, CA, United States;1. Department of Health Sciences, Lund University, Box 157, S-221 00 Lund, Sweden;2. Habilitation & Health, The Habilitation, Skaraborgsgatan 19 A, S-541 50 Skovde, Sweden;3. Habilitation & Health, Ekelundsgatan 8, S-411 83 Gothenburg, Sweden |
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| Abstract: | BackgroundThere is a paucity regarding interventions in general, and especially internet-delivered treatment options, for adolescents and young adults with autism spectrum disorder (ASD), despite the group´s capacity and willingness to utilize computer-mediated communication. This open feasibility study evaluated the new internet-delivered, psychoeducational intervention, SCOPE (Spectrum COmputerized PsychoEducation), for adolescents and young adults aged 16–25 years with ASD in the normative IQ range.MethodThe participation in SCOPE was facilitated by weekly contacts with disability service professionals (trained coaches) and the intervention consisted of eight ASD-themed modules. In an open feasibility study we evaluated treatment completion, treatment credibility and satisfaction, as well as preliminary efficacy. We assessed feasibility in an outpatient disability services context, regarding both participants’ and coaches’ experiences.ResultsTwenty-three out of the 29 included participants (79%) completed the intervention. The participants’ experience of treatment credibility was increased during the SCOPE web course and the overall satisfaction with the treatment was high. The coaches reported high treatment credibility and good clinical feasibility of the internet-based delivered intervention. The participants’ knowledge of ASD increased significantly from pre-intervention to post-intervention. The increased knowledge of ASD was not associated with negative effects on psychological well-being.ConclusionsOur results suggest that the internet-delivered psychoeducational intervention SCOPE is a feasible intervention and could contribute to youth’s sense of empowerment through increased knowledge of ASD and themselves. An ongoing randomized controlled study will generate further evidence concerning the SCOPE intervention. |
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| Keywords: | Autism Neurodevelopmental disorders Internet-mediated intervention e-services Young adults Digitally mediated interaction Digital communication |
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