孤独症儿童家长生存质量的研究

目的 分析孤独症患儿对其父母生存质量的影响,为有关机构展开工作提供参考依据。方法 采用普适性生存质量测定量表(SF-36),对90例孤独症患儿父母及120例正常儿童的父母进行评定。结果 1)孤独症组父母的生存质量总分及各领域评分均低于正常父母组(P＜0.01);2)低功能孤独症组的父母生存质量评分明显低于高功能孤独症组(P＜0.01);3)患儿家长的生存质量与患儿病情程度呈负相关,与智力水平呈正相关 (P＜0.01)。 结论 孤独症儿童对患儿父母生存质量有影响,低功能孤独症患儿则影响更大。

Effects of life quality on autistic disorder children's parents.

Objective To investigate the quality of life and related factors in parents of children with autism. Methods 90 parents of autistic children and 120 parents of normal children were participated.SF-36 was employed to evaluate both groups by questionnaire.Parents of autistic children also completed Clancy Autism Behavior Scale (CABS),Autistic Behavior Checklist (ABC),the Children Autistic Rating Scale (CARS)and Autistic children checked with the Gesell development diagnosis scale. Results 1)Parents of autistic children reported substantially lower scores of SF-36 than that of parents with normal group(P＜0.01).2)The quality of life of parents in low functioning intelligence group was worse than high functioning intelligence group(P＜0.01).3) The quality of life of parents was positively correlated with intelligence of autistic children,and negative correlated with symptom of autistic children. Conclusions Children with autistic disorder took grievous influence on parent's quality of life.Compared with high functioning intelligence group,the low functioning intelligence children's parents had even worse quality of life.