An European overview of genetic counselling supervision provision |
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| Institution: | 1. i3S – Instituto de Investigação e Inovação em Saúde, Universidade do Porto, Porto, Portugal;2. CGPP - Centro de Genética Preditiva e Preventiva, IBMC - Instituto de Biologia Molecular e Celular, i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto, Porto, Portugal;3. Instituto de Ciências Biomédicas Abel Salazar, Universidade do Porto, Porto, Portugal;4. AAJUDE - Associação de Apoio à Juventude Deficiente, Portugal;5. Hôpital Necker Enfants Malades, Paris, France;6. Department of Medical Genetics, Complejo Hospitalario de Navarra, Universidad Publica de Navarra (UPNA), Navarra-biomed-IdiSNA (Navarra Institute for Health Research), Pamplona, Navarra, Spain;7. Department of Genetics, SYNLAB Genetics, Lausanne, Switzerland;8. Clinical Genetics Department, Queen Elizabeth University Hospital. Glasgow, Scotland, United Kingdom;9. Department of Psychology, Babe?-Bolyai University, Romania;10. Division of Evolution and Genomic Sciences, University of Manchester, United Kingdom, Manchester Centre for Genomic Medicine, Manchester University Hospitals NHS Foundation Trust, UK;11. Genetics Department, IIB Sant Pau, Hospital de la Santa Creu i Sant Pau, Universitat Autònoma de Barcelona, Barcelona, 08041, Spain;12. Centro de Investigación Biomédica en Red en Enfermedades Raras (CIBERER), Spain |
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| Abstract: | Genetic testing is becoming more commonplace in general and specialist health care, and should always be accompanied by genetic counselling, according to legislation in many European countries and recommendations by professional bodies.Personal and professional competence is necessary to provide safe and effective genetic counselling. Clinical and counselling supervision of genetics healthcare practitioners plays a key role in quality assurance, providing a safe environment not only for patients but for professionals too. However, in many European countries, genetic counsellors are still an emerging professional group and counselling supervision is not routinely offered and there are no enough evidences on the impact of these insufficiencies. This study aimed to explore the current status of genetic counselling supervision provision across Europe and to ascertain factors that might be relevant for the successful implementation of counselling supervision.A total of 100 practitioners responded to an online survey; respondents were from 18 countries, with the majority working in France (27%) and Spain (17%). Only 34 participants reported having access to genetic counselling supervision. Country of origin, the existence of a regulation system and years of experience were factors identified as relevant, influencing access and characteristics of counselling supervision.Although there is a growing number of genetic counsellors trained at European level, just a few countries have implemented and required as mandatory the access to genetic counselling supervision. Nevertheless, this is essential to ensure a safe and effective genetic counselling and should be regulated at the European genetic healthcare services. |
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| Keywords: | Service provision Reflective practice Patients' safety Genetic counselling Counselling supervision |
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