Family burden,child disability,and the adjustment of mothers caring for children with epilepsy: Role of social support and coping |
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| Affiliation: | 1. INSERM UMR 1094, Tropical Neuroepidemiology, Limoges, France;2. Univ Limoges, School of Medicine, Institute of Neuroepidemiology and Tropical Neurology, CNRS FR 3503 GEIST, Limoges, France;3. Université des Sciences de la Santé, DEBIM, EA NEMIT, Faculté de Médecine, Libreville, Gabon;4. CHU, CEBIMER, Limoges, France;5. Service de Neurologie, CHUL, Libreville, Gabon;6. Service de Pédiatrie, CHUA/Département de Pédiatrie, Faculté de Médecine, Libreville, Gabon;7. Centre Hospitalier Esquirol, Pôle Hospitalo-Universitaire de psychiatrie de l''enfant et de l''adolescent, Limoges, France;8. LEMACEN: Laboratoire d''Epidémiologie des Maladies Chroniques et Négligées, Cotonou, Benin;1. Department of Rehabilitation Medicine, University of Washington, Seattle, WA, USA;2. Medical and Scientific Affairs, Zogenix, Inc., Emeryville, CA, USA;1. Department of Pediatrics, University Hospital of Ioannina, Ioannina, Greece;2. Faculty of Social Sciences, Hellenic Open University, Patras, Greece;3. Department of Child Health, Ioannina University School of Medicine, Ioannina, Greece;1. Gillberg Neuropsychiatry Centre, University of Gothenburg, Kungsgatan 12, Gothenburg, Sweden;2. Research Department, Young Epilepsy, Lingfield, Surrey RH7 6PW, UK;3. Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden;4. Dept. of Paediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden;5. Dept. of Clinical Neuroscience and Rehabilitation, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden;1. University of Alabama at Birmingham Department of Sociology, Birmingham, AL, USA;2. Department of Neurology, Birmingham, AL, USA |
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| Abstract: | PurposeThis study was designed to contribute to the existing research on the coping behaviors, social support, and mental health outcomes in parents of children with epilepsy in the United States.MethodsParticipants included 152, predominantly Caucasian (89.5%), married (78.9%) women (95.4%). Via a web-based interface, mothers completed questionnaires assessing the impact of their child's disability on their family (i.e., severity of their child's disability, family burden, and personal stress), social resources (i.e., perceived social support), coping (i.e., emotion-focused and social support seeking), and adjustment (i.e., depression and anxiety).ResultsAfter controlling for demographic variables, mediational analysis revealed that mothers' perceptions of the severity of their child's disability were associated with decreased perceived social support, which was then related to higher reported levels of depression and anxiety. Similarly, low levels of perceived social support partially mediated the relation between family burden and depression, anxiety, and stress. Finally, mothers' perceptions of the severity of their children's disability and family burden were unrelated to their reports of emotion-focused or social support seeking coping. However, their use of emotion-focused and social support seeking behaviors was related to lower levels of depression.ConclusionLow levels of perceived social support may help to explain the mechanisms underlying the relation between mothers' perceptions of the severity of their child's disability and family burden on their mental health adjustment, such as depression and anxiety. |
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