Developing tools to evaluate quality of care management for patients living with multiple sclerosis: An original French initiative |
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| Affiliation: | 1. Service d’Epidémiologie et de Santé Publique du Centre Hospitalier Universitaire de Rennes, 35000, Rennes, France;2. France and Equipe d’Accueil 3279 Centre d’Etudes et de Recherche sur les Services de Santé et la Qualité de Vie, Aix Marseille Université, 13000 Marseille, France;3. Service de neurologie du Centre Hospitalier Universitaire de Rennes et Clinical Neuroscience Center CIC-P 1414 Inserm, 35000 Rennes, France;4. Équipe d’Accueil 4360 Adaptation, mesure et évaluation en santé, Approches interdisciplinaires, Université de Lorraine and Service de Neurologie du Centre Hospitalier Universitaire de Nancy, 54000 Nancy, France;5. Clinique Neurologique du Centre Hospitalier Universitaire de Nantes, 44000 Nantes, France;6. Pôle de médecine physique et de rehabilitation Saint Hélier, 35000 Rennes, France;7. Clinical Neuroscience Centre, CIC-P 1414 Inserm Université de Rennes 1, 35000 Rennes, France;1. Department of Neurology, University Hospital of Nancy, Nancy, France;2. Neurosciences of Systems and Cognition Project, BioSIS Department (Département Biologie, Signaux et Systèmes en Cancérologie et Neurosciences), Research Center for Automatic Control of Nancy (CRAN), Lorraine University, CNRS, UMR 7039, Vandoeuvre, France;1. Epilepsy Unit, Neurology Department, Strasbourg University Hospital, Strasbourg, France;2. IMIS-Laboratory, ICUBE, Strasbourg, France;3. Neurology Department, Rothschild Foundation Hospital, Paris, France;4. Department of Neurology, Saint Joseph University, Beirut, Lebanon;5. Analytical Neurophysiology Lab, Montreal Neurological Institute, McGill University, Montreal, Quebec, Canada;1. Department of Internal Medicine, Hedi Chaker Hospital, University of Sfax, 3029 Sfax, Tunisia;2. Department of Neurology, Hospital Of Gabes, University of Sfax, 3029 Sfax, Tunisia;3. Department of Radiology, Hedi Chaker Hospital, University of Sfax, 3029 Sfax, Tunisia;1. Department of Neurology, Adolphe de Rothschild Foundation Hospital, 29, rue Manin, 75019 Paris, France;2. Department of Neuroradiology, Adolphe de Rothschild Foundation Hospital, Paris, France;3. Department of Hematology, Centre Hospitalier de Versailles, Versailles, France;4. Department of Nuclear Medicine, Delafontaine Hospital, Saint Denis, France |
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| Abstract: | IntroductionAssessing the quality of care management for patients with a chronic disease such as multiple sclerosis (MS) is a major challenge for healthcare systems around the world. It needs to be carried out using tools that are recognized by professionals and patients alike, and should concern practices, systems, and scientific data. No such tools are currently available in Europe. The purpose of the present study was to develop indicators to contribute to assess the quality of care management for patients with MS in France.MethodsAn expert panel comprising 25 professionals from well known teams across France selected the indicators on the basis of consensus. In accordance with the Rand/UCLA Appropriateness Method, each expert had to agree with the recommendations, and there had to be agreement among the experts.ResultsThe expert panel selected 48 indicators representing seven domains of care management for patients with MS: physical and rehabilitation medicine, disease progression, access to care, magnetic resonance imaging (MRI) management, relapse management, management of disease-modifying treatments, and management of the symptoms of disability progression. Some of these quality indicators (notably pertaining to MRI management) had not previously been identified in the literature.ConclusionThese indicators may allow professionals to comprehensively assess and compare their practices and cooperation, thereby contributing to improve the quality of care management for patients with MS in France. |
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| Keywords: | Multiple sclerosis Care management Clinical pathways practice indicators practice evaluation |
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