Physical function assessment tools in pediatric rheumatology |
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Authors: | Lakshmi Nandini Moorthy Margaret GE Peterson Melanie J Harrison Karen B Onel Thomas JA Lehman |
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Institution: | (1) Division of Rheumatology, Robert Wood Johnson Medical School-UMDNJ, Dept. of Pediatrics, 08903 New Brunswick, NJ, USA;(2) Hospital For Special Surgery, 535 East 70th Street, 10021 New York, NY, USA;(3) Wyeth Research, 500 Arcola Road, 19426 Collegeville, PA, USA;(4) Pediatric Rheumatology, The Univeristy of Chicago Medical Center, MC5044, 5841 South Maryland Avenue, 60637 Chicago, IL, USA;(5) Pediatric Rheumatology, Hospital for Special Surgery, 535, East 70th Street, 10021 New York, NY, USA |
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Abstract: | Pediatric rheumatic diseases with predominant musculoskeletal involvement such as juvenile idiopathic arthritis (JIA) and
juvenile dermatomyositis(JDM) can cause considerable physical functional impairment and significantly affect the children's
quality of life (QOL). Physical function, QOL, health-related QOL (HRQOL) and health status are personal constructs used as
outcomes to estimate the impact of these diseases and often used as proxies for each other. The chronic, fluctuating nature
of these diseases differs within and between patients, and complicates the measurement of these outcomes. In children, their
growing needs and expectations, limited use of age-specific questionnaires, and the use of proxy respondents further influences
this evaluation. This article will briefly review the different constructs inclusive of and related to physical function,
and the scales used for measuring them. An understanding of these instruments will enable assessment of functional outcome
in clinical studies of children with rheumatic diseases, measure the impact of the disease and treatments on their lives,
and guide us in formulating appropriate interventions. |
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