The Brisbane Burn Scar Impact Profile (child and young person version) for measuring health-related quality of life in children with burn scars: A longitudinal cohort study of reliability,validity and responsiveness |
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| Authors: | M. Simons R. Kimble S. McPhail Z. Tyack |
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| Affiliation: | 1. Department of Occupational Therapy, Queensland Children’s Hospital, 501 Stanley St, South Brisbane, Queensland 4101, Australia;2. Centre for Burns and Trauma Research, Child Health Research Centre, 62 Graham Street, South Brisbane, Queensland 4101, Australia;3. Department of Paediatric Surgery, Urology, Neonatal Surgery, Burns and Trauma, Queensland Children’s Hospital, South Brisbane, Queensland 4101, Australia;4. Faculty of Medicine, The University of Queensland, St Lucia, Queensland 4067, Australia;5. Faculty of Health, Queensland University of Technology, Kelvin Grove, Queensland 4059, Australia;6. Institute of Health and Biomedical Innovation and School of Public Health and Social Work, Queensland University of Technology, Kelvin Grove, Queensland 4059, Australia;7. Centre for Functioning and Health Research, Metro South Health, Buranda, Queensland, 4102, Australia |
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| Abstract: | BackgroundClinical practice benefits from the measurement of health-related quality of life (HRQoL) to reflect the impact of the disease and treatments from the patient’s lived experience. The Brisbane Burn Scar Impact Profile (child and young person version, BBSIP8?18), developed in 2013, is a self-report measure of burn scar-specific HRQoL. The purpose of the study was to test reliability, validity and responsiveness of this measure for an evaluative purpose.MethodsYoung people aged 8–18 years with burn scarring or at probable risk of burn scarring (defined as 14 days or longer to re-epithelialize) were included in a prospective, longitudinal cohort study. Data was collected at a paediatric burn centre at baseline (when ≥85% of the total body surface area re- epithelialized), then 1–2 weeks and 1-month post-baseline. Participants completed measures of HRQoL (BBSIP8?18, Pediatric Quality of Life Inventory) and scar characteristics (Patient Observer Scar Assessment Scale) at each time-point.ResultsSixty-five participants completed the baseline testing. Forty-nine participants completed testing at 1–2 weeks post-baseline and thirty-two at 1-month post-baseline. Internal consistency of item groups ranged from Cronbach’s α 0.60 (frequency of sensory symptoms) to 0.90 (emotional reactions). All item groups expected to be stable had acceptable test-retest reliability (ICC = 0.71–0.83), except ‘mobility’ and ‘friendships and social interaction’ (ICC = 0.52 and 0.45). Construct validity was supported with 10 of 13 (77%) hypothesised correlations of change in the BBSIP8?18 items corresponding with changes in external criterion measures. The responsiveness of 8 out of 10 item groups tested against an external criterion was supported (AUC = 0.71–0.92).ConclusionThe BBSIP8?18 has acceptable reliability, validity and responsiveness supporting its use as an evaluative self-report measure of burn scar-specific HRQoL in the early post-acute phase after burn injury. |
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| Keywords: | Cicatrix Burn scar Health-related quality of life Patient reported outcome measure Pediatric |
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