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Integrated psychological care services within seizure settings: Key components and implementation factors among example services in four ILAE regions: A report by the ILAE Psychiatry Commission
Authors:Milena Gandy,Rosa Michaelis,Jayne Acraman,Kirsten A. Donald,Michael Fitzpatrick,W. Curt LaFrance Jr.,Seth A. Margolis,Avani C. Modi,Markus Reuber,Venus Tang,Zoe Thayer,Kirsten Verity,Janelle L. Wagner,Jo Wilmshurst,Sarah Whittaker,Heidi M. Munger   Clary
Affiliation:1. eCentreClinic, Faculty of Medicine, Health, and Human Sciences, School of Psychological Sciences, Macquarie University, Sydney, New South Wales, Australia;2. Ruhr-Epileptology, Department of Neurology, University Hospital Knappschaftskrankenhaus Bochum, Ruhr University Bochum, Bochum, Germany;3. Department of Neurology, Royal Hallamshire Hospital, Sheffield, UK;4. Division of Developmental Paediatrics, Department of Paediatrics and Child Health, Red Cross War Memorial Children's Hospital, Cape Town, South Africa

Neurosciences Institute, University of Cape Town, Cape Town, South Africa;5. Department of Neurosciences, Royal Prince Alfred Hospital, Sydney, New South Wales, Australia;6. Division of Neuropsychiatry and Behavioral Neurology, Departments of Psychiatry and Neurology, Rhode Island Hospital, Brown University, Providence, Rhode Island, USA;7. Division of Neuropsychology, Department of Psychiatry, Rhode Island Hospital, Brown University, Providence, Rhode Island, USA

Department of Psychiatry and Human Behavior, Alpert Medical School of Brown University, Providence, Rhode Island, USA;8. Division of Behavioral Medicine and Clinical Psychology, College of Medicine, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, Ohio, USA;9. Academic Neurology Unit, Royal Hallamshire Hospital, University of Sheffield, Sheffield, UK;10. Department of Clinical Psychology, Prince of Wales Hospital, Hospital Authority, Sha Tin, Hong Kong

Division of Neurosurgery, Department of Surgery, Faculty of Medicine, Chinese University of Hong Kong, Ma Liu Shui, Hong Kong;11. Paediatric Psychology and Liaison Service, Royal Hospital for Children and Young People, NHS Lothian Child and Adolescent Mental Health Service, South Edinburgh, UK;12. College of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA;13. Department of Paediatric Neurology, Neuroscience Institute, Red Cross War Memorial Children's Hospital, University of Cape Town, Cape Town, South Africa;14. Department of Neurology, Wake Forest University School of Medicine, Winston-Salem, North Carolina, USA

Abstract:Mental health comorbidities are prevalent and problematic in patients with seizures but often suboptimally managed. To address common gaps in care, the Integrated Mental Health Care Pathways Task Force of the International League Against Epilepsy (ILAE) Psychiatry Commission was tasked with providing education and guidance on the integration of mental health management (e.g., screening, referral, treatment) into routine seizure care. This report aims to describe a variety of established services in this area, with a specific focus on psychological care models. Services were identified by members of the ILAE Psychiatry Commission and authors of psychological intervention trials in epilepsy. A total of eight services met inclusion criteria and agreed to be showcased. They include three pediatric and five adult services located across four distinct ILAE regions (Europe, North America, Africa, Asia Oceania). The report describes the core operations, known outcomes, and implementation factors (i.e., barriers and facilitators) of these services. The report concludes with a set of practical tips for building successful psychological care services within seizure settings, including the importance of having local champions, clearly defining the scope of the service, and establishing sustainable funding models. The breadth of exemplars demonstrates how models tailored to the local environment and resources can be implemented. This report is an initial step to disseminate information regarding integrated mental health care within seizure care settings. Future work is needed to systematically examine both psychological and pharmacological care models and to further establish the evidence base in this area, especially around clinical impact, and cost-effectiveness.
Keywords:anxiety  depression  epilepsy  mental health  psychologist  psychotherapy
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