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Designing an international survey for organisations serving people with Down syndrome |
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| Authors: | Daniel J. Kats Brian G. Skotko Gert de Graaf Ellen Skladzien Brian Takashi Hooper Rose Mordi Tetiana Mykhailenko Frank Buckley Vasiliki Patsiogiannis Kavita Krell Kelsey Haugen Karen Donelan |
| Affiliation: | 1. Down Syndrome Program, Division of Medical Genetics and Metabolism, Department of Pediatrics, Massachusetts General Hospital, Boston, Massachusetts, USA;2. Dutch Down Syndrome Foundation, Meppel, The Netherlands;3. Down Syndrome Australia, North Melbourne, Australia;4. Acceptions, Tokyo, Japan;5. Down Syndrome Foundation Nigeria, Lagos, Nigeria;6. Ukrainian Down Syndrome Organization, Kyiv, Ukraine;7. Down Syndrome Education International, Cumbria, UK;8. Heller School for Social Policy and Management, Brandeis University, Waltham, Massachusetts, USA Health Policy Research Center, The Mongan Institute, Massachusetts General Hospital, Boston, Massachusetts, USA Department of Medicine, Harvard Medical School, Harvard University, Boston, Massachusetts, USA |
| Abstract: | |
| Keywords: | down syndrome quality of life T21 trisomy 21 |