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Piloting the use of global health measures in a Down syndrome clinic |
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| Authors: | Stephanie L. Santoro Ashlee Campbell Clorinda Cottrell Karen Donelan Ben Majewski Nicolas M. Oreskovic Vasiliki Patsiogiannis Amy Torres Brian G. Skotko |
| Affiliation: | 1. Division of Medical Genetics and Metabolism, Department of Pediatrics, Massachusetts General Hospital, Boston, MA, USA;2. Survey Research and Implementation Unit, Division of Clinical Research, Massachusetts General Hospital, Boston, MA, USA Department of Medicine, Harvard Medical School, Boston, MA, USA;3. Division of Medical Genetics and Metabolism, Department of Pediatrics, Massachusetts General Hospital, Boston, MA, USA Department of Pediatrics, Harvard Medical School, Boston, MA, USA |
| Abstract: | |
| Keywords: | Down syndrome global health health health-related quality of life trisomy 21 |