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Sharing Medical Data for Health Research: The Early Personal Health Record Experience |
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| Authors: | Elissa R Weitzman Liljana Kaci Kenneth D Mandl |
| Institution: | 5.Manton Center for Orphan Disease, Children''s Hospital Boston, Boston, United States;4.Division of Emergency Medicine, Children''s Hospital Boston, Boston, United States;3.Children''s Hospital Informatics Program at the Harvard-MIT Division of Health Sciences and Technology, Children''s Hospital Boston, Boston, United States;2.Division of Adolescent Medicine, Children''s Hospital, Boston, United States;1.Department of Pediatrics, Harvard Medical School, Boston, United States |
| Abstract: | |
| Keywords: | Medical records personally controlled health records (PCHR) personal health records data sharing information altruism HITECH public health informatics |