Progressive exhaustion: A qualitative study on the experiences of Iranian family caregivers regarding patients undergoing hemodialysis |
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Institution: | 1. Nursing Department, Faculty of Nursing & Midwifery, Shahrekord University of Medical Sciences, Shahrekord, Iran;2. Nursing Department, Faculty of Medical Sciences, Tarbiat Modares University, Tehran, Iran;3. Nursing and Midwifery Care Research Center, Faculty of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran;4. Nursing Care Research Center in Chronic Diseases, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran |
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Abstract: | ObjectiveThe aim of this study was to explore the burden of care for patients undergoing hemodialysis from the experiences of family caregivers.MethodsIn this qualitative study, a content analysis approach was used for data collection and analysis. Participants were 16 family caregivers selected through purposive sampling from four medical education centers affiliated with Ahvaz Jundishapur University of Medical Sciences, Iran. Semi-structured interviews were held to collect data.ResultsFour categories were developed as follows: ‘care challenges’, ‘psychological vulnerabilities’, ‘the chronic nature of care ’and “care in the shade”. The categories led to the development of the main theme of ‘progressive exhaustion’ experienced by the family caregivers during the provision of care to patients undergoing hemodialysis.ConclusionFamily caregivers have a significant role in the process of patient care, and this role leads them to progressive exhaustion; therefore, the overall health of the caregivers should be taken into account and more attention should be paid to their quality of life, social welfare, and satisfaction level. |
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Keywords: | Family caregivers Hemodialysis Progressive exhaustion Qualitative study |
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