Caregiver outcomes of a dementia care program |
| |
| Institution: | 1. Alzheimer''s and Dementia Care Program, Department of Geriatrics, University of California, Los Angeles 200 UCLA Med Plaza #365A, Los Angeles, CA 90095, United States;2. Reynolds Section of Geriatrics, Department of Medicine, University of Oklahoma Health Sciences Center 1122 N.E. 13th Street, ORB 1200 Oklahoma City, OK 73117, United States;3. Multicampus Program in Geriatric Medicine and Gerontology, David Geffen School of Medicine, University of California, Los Angeles, CA 90095, United States;4. David Geffen School of Medicine, University of California, Los Angeles, 10945 Le Conte Ave. Suite 2339, Los Angeles, CA 90095, United States;5. Multicampus Program in Geriatric Medicine and Gerontology, David Geffen School of Medicine, University of California, Los Angeles, CA 90095, United States;6. Division of General Internal Medicine and Health Services Research, David Geffen School of Medicine, University of California, Los Angeles 911 Broxton Avenue Los Angeles, CA 90095, United States;7. Jona Goldrich Center for Alzheimer''s and Memory Disorders, Department of Neurology, Cedars-Sinai Medical Center, 127 S. San Vicente Blvd, A6600, Los Angeles, CA 90048, United States;1. The University of Iowa College of Nursing USA;2. Geriatric Research, Education and Clinical Center (11G), William S. Middleton Memorial Veterans Hospital, Madison, WI, USA;3. William S. Middleton Memorial Veterans Hospital, Nursing Services, Madison, WI, USA;4. Pennsylvania State University College of Nursing USA;1. Maastricht University, Faculty of Health, Medicine and Life Sciences, Care and Public Health Research Institute (CAPHRI), Department of Health Services Research, P.O. Box 616, 6200 MD Maastricht, the Netherlands;2. Zuyd University of Applied Sciences, Faculty of Health, Research Centre for Community Care, P.O. Box 550, 6400 AN Heerlen, the Netherlands;3. University Medical Centre Utrecht, University Utrecht, Julius Centre for Health Sciences and Primary Care, P.O. Box 85500, 3508 GA Utrecht, the Netherlands;4. University Medical Centre Utrecht, Programme in Clinical Health Sciences, P.O. Box 85500, 3508 GA Utrecht, the Netherlands;1. AGSF, President of the American Geriatrics Society, USA;1. College of Nursing, University of Massachusetts, Amherst, 120 Skinner Hall, 651 North Pleasant Street, Amherst, MA 01003 USA;2. Nurse Quality Management Administrator, Vermont Veterans Home, 325 North Street, Bennington, Vermont 05201 USA;3. College of Nursing, University of Massachusetts, Amherst, 020 Skinner Hall, 651 North Pleasant Street, Amherst, MA 01003 USA |
| |
| Abstract: | The University of California, Los Angeles Alzheimer's and Dementia Care (ADC) program enrolls persons living with dementia (PLWD) and their family caregivers as dyads to work with nurse practitioner dementia care specialists to provide coordinated dementia care. At one year, despite disease progression, overall the PLWDs’ behavioral and depressive symptoms improved. In addition, at one-year, overall caregiver depression, strain, and distress related to behavioral symptoms also improved. However, not all dyads enrolled in the ADC program showed improvement in these outcomes. We conducted a mixed qualitative-quantitative study to explore why some participants did not benefit and what could be changed in this and other similar dementia management programs to increase the percentage who benefit. Semi-structured interviews (N=12) or surveys (N=41) were completed with 53 caregivers by telephone, mail and online. Seven areas for potential program improvement were identified from the first 12 interviews. These included: recommendations that did not match caregivers’ perceived care needs, barriers to accessing care and utilizing resources, differing care needs based on stage of dementia, needing services not offered by the ADC, needing more education or support, behavioral recommendations that the caregiver felt did not work, and poor rapport of the dementia expert with caregivers. Despite having been identified as having had no clinical benefit from participating in the program, most caregivers (85%) reported that the program was very beneficial or extremely beneficial. Respondents identified the close, longitudinal relationship and access to a dementia care expert as particularly beneficial. This dichotomy highlights that perceived benefit for most of the interviewed caregivers was not captured with the formal instruments used by the program. |
| |
| Keywords: | |
| 本文献已被 ScienceDirect 等数据库收录！ |
|
