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Promoting Patient and Family Partnerships in Ambulatory Care Improvement: A Narrative Review and Focus Group Findings
Authors:Karin E Johnson  Tracy M Mroz  Marie Abraham  Marlaine Figueroa Gray  Mary Minniti  Wendy Nickel  Robert Reid  Jennifer Sweeney  Dominick L Frosch  Debra L Ness  Clarissa Hsu
Institution:1.Group Health Research Institute,Seattle,USA;2.University of Washington,Seattle,USA;3.Institute for Patient- and Family-Centered Care,Bethesda,USA;4.American College of Physicians,Philadelphia,USA;5.Trillium Health Partners,Mississauga,Canada;6.National Partnership for Women and Families,Washington,USA;7.PAMF Research Institute,Palo Alto,USA
Abstract:

Introduction

Ambulatory practices that actively partner with patients and families in quality improvement (QI) report benefits such as better patient/family interactions with physicians and staff, and patient empowerment. However, creating effective patient/family partnerships for ambulatory care improvement is not yet routine. The objective of this paper is to provide practices with concrete evidence about meaningfully involving patients and families in QI activities.

Methods

Review of literature published from 2000–2015 and a focus group conducted in 2014 with practice advisors.

Results

Thirty articles discussed 26 studies or examples of patient/family partnerships in ambulatory care QI. Patient and family partnership mechanisms included QI committees and advisory councils. Facilitators included process transparency, mechanisms for acting on patient/family input, and compensation. Challenges for practices included uncertainty about how best to involve patients and families in QI. Several studies found that patient/family partnership was a catalyst for improvement and reported that partnerships resulted in process improvements. Focus group results were concordant.

Conclusion

This paper describes emergent mechanisms and processes that ambulatory care practices use to partner with patients and families in QI including outcomes, facilitators, and challenges.

Funding

Gordon and Betty Moore Foundation.
Keywords:
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