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The International Pemphigus and Pemphigoid Foundation |
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| Authors: | Murrell Dédée F Werth Victoria P Segall Janet Zrnchik Will Stuart Molly Sirois David |
| Affiliation: | aDepartment of Dermatology, St George Hospital, University of New South Wales, Gray Street, Kogarah, Sydney, NSW 2217, Australia;bDepartment of Dermatology, Perelman Center for Advanced Medicine, Suite 1-330A, 3400 Civic Center Boulevard, Philadelphia, PA 19104, USA;cDivision of Dermatology, Philadelphia V.A. Medical Center, Philadelphia, PA, USA;dInternational Pemphigus Pemphigoid Foundation, 2701 Cottage Way # 16, Sacramento, CA 85825, USA;eDepartment of Dentistry, New York University, 413 East 53rd Street, New York, NY 10022, USA |
| Abstract: | The International Pemphigus Pemphigoid Foundation (IPFF) was founded in 1997. The IPPF lists more than 4500 members. The IPPF provides peer health coaches to aid patients in the navigation of the health care system and recommends dermatologists and other specialists in their area who are experts in autoimmune bullous disease. The IPPF hosts the largest worldwide registry of pemphigus/pemphigoid patients with biospecimen collection opportunities are planned. Twice a year the IPPF hosts formal meetings with invited speakers. |
| Keywords: | International Pemphigus Pemphigoid Foundation Pemphigus Pemphigoid Pemphigus vulgaris |
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