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Impact of very low birth weight infants on the family at 3 months corrected age
Authors:Balakrishnan Asha  Stephens Bonnie E  Burke Robert T  Yatchmink Yvette  Alksninis Barbara L  Tucker Richard  Cavanaugh Ellen  Collins Amy Marchand  Vohr Betty R
Institution:
  • a Department of Pediatrics, Women and Infants Hospital Providence, Rhode Island, United States
  • b Department of Pediatrics, Rhode Island Hospital, Providence, Rhode Island, United States
  • Abstract:

    Background

    Very low birth weight infants (VLBW, <1500 g) have increased impact on families compared to term infants. However, there is limited research examining this impact in the first months post-discharge.

    Aim

    To determine maternal, neonatal, and infant characteristics associated with greater impact on the family at 3 months corrected age in VLBW infants. It was hypothesized that social/environmental and medical risk factors would be associated with higher impact.

    Study design

    Maternal, neonatal, and infant data were collected prospectively. Parents completed the Impact on Family, Family Support, and Family Resource Scales. Associations between characteristics and impact scores were analyzed by t-test and Pearson's correlation. Regression models for each impact score identified significant risk factors for impact.

    Subjects

    152 VLBW infants born February 28, 2007 to September 5, 2008 who had a follow-up evaluation at 3 months corrected age.

    Outcome measure

    Impact on family.

    Results

    Siblings in the home, neonatal medical risk factors, longer hospitalization, more days on ventilator or oxygen, lower gestational age, lower social support, and poorer family resources were associated with increased impact. Multivariate analyses identified siblings in the home, poorer family resources, lower gestational age, and oxygen requirement at 3 months as the most important predictors of impact.

    Conclusions

    Social/environmental and medical risk factors contribute to impact on family. Families with identified risk factors should receive support services to assist them in coping with the burden of caring for a VLBW infant.
    Keywords:VLBW  very low birth weight  CA  corrected age  IOF  Impact on Family  FSS  Family Support Scale  FRS  Family Resource Scale  NICU  Neonatal Intensive Care Unit  CLD  chronic lung disease  NEC  necrotizing enterocolitis  PVL  periventricular leukomalacia  IVH  intraventricular hemorrhage
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