Spontaneous reports of most distressing concerns in patients with inoperable lung cancer: at present,in retrospect and in comparison with EORTC-QLQ-C30+LC13 |
| |
Authors: | Eva Broberger Carol Tishelman Louise von Essen Eva Doukkali Mirjam A G Sprangers |
| |
Institution: | (1) Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden;(2) Research and Development Unit, Stockholm Sjukhem Foundation, Stockholm, Sweden;(3) Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden;(4) Department of Medical Psychology, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands;(5) Department of Public Health and Caring Sciences, Psychosocial oncology, Uppsala University, Uppsala, Sweden |
| |
Abstract: | Patients with lung cancer experience considerable distress. Therefore, accurate methods for assessing distress and quality
of life over time may play a key role for managing and evaluating palliative care. Alternatives to commonly used standardized
questionnaires are individual measures. This study prospectively and retrospectively explored the concerns that 46 patients
with inoperable lung cancer spontaneously reported as causing most distress close to diagnosis and 6 months later. Changes
in content individually generated through a structured inductive freelisting were compared with EORTC-QLQ-C30+LC13 ratings.
The results showed that patients perceived a wide variety of concerns as most distressing and that their concerns changed
over time. Between 56 and 62% of these concerns were assessed by items included in the EORTC-QLQ-C30+LC13 questionnaires.
Furthermore, patients’ reports of most distress from fatigue, pain and dyspnea were not always reflected in intensity ratings
of comparable EORTC-QLQ-C30+LC13 items. These results indicate that items included in standardized measures are not always
adequate to assess patients’ concerns, priorities and changes over time. In addition to standardized questionnaires, individualized
measures may be useful in the clinical palliative setting for providing detailed information about the individual’s problems
and prioritizations. |
| |
Keywords: | Change Distress Freelisting Lung cancer |
本文献已被 SpringerLink 等数据库收录! |
|