基于FHIR模型和CDASH模型的食管癌筛查队列数据共享技术规范的建立

  目的  通过制定食管癌筛查队列数据标准，促进食管癌筛查队列之间的数据整合、共享和利用。  方法  通过系统全面检索中文、英文数据库，筛选出高质量且有代表性的食管癌筛查队列，提取其基础、重要的数据资源。学习并参考快捷医疗保健互操作资源(Fast Healthcare Interoperability Resources, FHIR)和临床数据采集标准(Clinical Data Acquisition Standards Harmonization, CDASH)模型，引用数据变量定义，建立食管癌筛查队列数据标准。  结果  本研究共纳入现有的8个高质量食管癌筛查队列，提取其中的数据资源，与FHIR和CDASH数据标准模型的匹配度较高，初建数据标准可行。  结论  食管癌筛查队列数据标准的建立，为今后建立食管癌筛查队列时需收集的数据资源和问卷内容提供思路。

Establishment of technical specifications for data sharing in esophageal cancer screening cohort based on FHIR model and CDASH model

  Objective  To promote the data integration, sharing and utilization of esophageal cancer screening cohorts by establishing a data standard.  Methods  We systematically and comprehensively retrieved relative databases and selected representative esophageal cancer screening cohorts with high-quality. Relevant information were extracted from these studies, then we have referenced the fast healthcare interoperability resources (FHIR) model and clinical data acquisition standards harmonization (CDASH) model to define variables and establish the data standard.  Results  In this study, eight high-quality esophageal cancer screening cohorts were included. Their data matched well with the FHIR and CDASH models, which proves that the newly established data standard was feasible.  Conclusion  The establishment of the data standard of esophageal cancer screening cohorts helps with future cohort design and data collection.