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Developing a Dementia Research Registry: a descriptive case study from North Thames DeNDRoN and the EVIDEM programme |
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| Authors: | Steve Iliffe Lisa Curry Kalpa Kharicha Greta Rait Jane Wilcock David Lowery Archana Tapuria Dipak Kalra Craig Ritchie |
| Affiliation: | (1) Research Department of Primary Care & Population Health, University College London, Royal Free campus, Rowland Hill St, NW3 2PF London, UK;(2) West London Mental Health Trust, London, UK;(3) Central & NW London NHS Foundation Trust, London, UK;(4) Centre for Health Informatics and Multiprofessional Education, University College London, Holborn Union Building, Highgate Hill, N19 5LW London, London, UK;(5) West London NHS Mental Health Trust, London, UK |
| Abstract: | AimTo describe the development of a dementia research registry, outlining the conceptual, practical and ethical challenges, and to report initial experiences of recruiting people with dementia to it from primary and secondary care. |
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