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Monitoring quality of care for patients with pancreatic cancer: a modified Delphi consensus
Authors:Ashika D. Maharaj  Liane Ioannou  Daniel Croagh  John Zalcberg  Rachel E. Neale  David Goldstein  Neil Merrett  James G. Kench  Kate White  Charles H.C. Pilgrim  Lorraine Chantrill  Peter Cosman  Andrew Kneebone  Lara Lipton  Mehrdad Nikfarjam  Jennifer Philip  Charbel Sandroussi  Peter Tagkalidis  Sue M. Evans
Affiliation:1. Department of Epidemiology and Preventative Medicine, Monash University, Melbourne, Australia;2. Monash University, Melbourne, Victoria, Australia;3. Monash Health, Clayton, Victoria, Australia;4. Epworth Healthcare, Richmond, Australia;5. QIMR Berghofer Medical Research Institute, Herston, Australia;6. Prince of Wales Clinical School, UNSW Medicine, NSW, Australia;7. School of Medicine, Western Sydney University, NSW, Australia;8. Royal Prince Alfred Hospital, Camperdown, NSW, Australia;9. Sydney Nursing School, University of Sydney, Australia;10. Alfred Health, Melbourne, Victoria, Australia;11. Cabrini, Malvern, Victoria, Australia;12. Peninsula Health, Frankston, Victoria, Australia;13. Peninsula Private Hospital, Frankston, Victoria, Australia;14. Kinghorn Cancer Centre, St Vincent''s Hospital, NSW, Australia;15. Garvan Institute of Medical Research and University of New South Wales, NSW, Australia;16. School of Medicine, Faculty of Science, Medicine & Health, University of Wollongong, NSW, Australia;17. Northern Clinical School, University of Sydney, Australia;18. Royal Melbourne Hospital, Parkville, Victoria, Australia;19. Western Health, Sunshine, Victoria, Australia;20. Melbourne University, Parkville, Victoria, Australia;21. Austin Health, Heidelberg, Australia;22. Central Clinical School, University of Sydney, NSW, Australia;23. St Vincent''s Private Hospital, Darlinghurst, NSW, Australia;24. Faculty of Health, University of Technology, NSW, Australia;25. Department of Upper GI Surgery, Royal North Shore Hospital, NSW, Australia;26. Macquarie University Hospital, Macquarie University, Australia
Abstract:

Background

Best practise care optimises survival and quality of life in patients with pancreatic cancer (PC), but there is evidence of variability in management and suboptimal care for some patients. Monitoring practise is necessary to underpin improvement initiatives. We aimed to develop a core set of quality indicators that measure quality of care across the disease trajectory.

Methods

A modified, three-round Delphi survey was performed among experts with wide experience in PC care across three states in Australia. A total of 107 potential quality indicators were identified from the literature and divided into five areas: diagnosis and staging, surgery, other treatment, patient management and outcomes. A further six indicators were added by the panel, increasing potential quality indicators to 113. Rated on a scale of 1–9, indicators with high median importance and feasibility (score 7–9) and low disagreement (<1) were considered in the candidate set.

Results

From 113 potential quality indicators, 34 indicators met the inclusion criteria and 27 (7 diagnosis and staging, 5 surgical, 4 other treatment, 5 patient management, 6 outcome) were included in the final set.

Conclusions

The developed indicator set can be applied as a tool for internal quality improvement, comparative quality reporting, public reporting and research in PC care.
Keywords:Correspondence Sue M. Evans   Department of Epidemiology and Preventative Medicine   553 St Kilda Road   3004   Melbourne   Victoria   Australia.
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