The OneFlorida Data Trust: a centralized,translational research data infrastructure of statewide scope |
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| Authors: | William R Hogan Elizabeth A Shenkman Temple Robinson Olveen Carasquillo Patricia S Robinson Rebecca Z Essner Jiang Bian Gigi Lipori Christopher Harle Tanja Magoc Lizabeth Manini Tona Mendoza Sonya White Alex Loiacono Jackie Hall Dave Nelson |
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| Affiliation: | 1. Department of Health Outcomes & Biomedical Informatics, University of Florida, Gainesville, Florida, USA;2. Bond Community Health Center, Tallahassee, Florida, USA;3. Department of Medicine, University of Miami, Coral Gables, Florida, USA;4. Research Institute, AdventHealth, Orlando, Florida, USA;5. UF Health, Gainesville, Florida, USA |
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| Abstract: | The OneFlorida Data Trust is a centralized research patient data repository created and managed by the OneFlorida Clinical Research Consortium (“OneFlorida”). It comprises structured electronic health record (EHR), administrative claims, tumor registry, death, and other data on 17.2 million individuals who received healthcare in Florida between January 2012 and the present. Ten healthcare systems in Miami, Orlando, Tampa, Jacksonville, Tallahassee, Gainesville, and rural areas of Florida contribute EHR data, covering the major metropolitan regions in Florida. Deduplication of patients is accomplished via privacy-preserving entity resolution (precision 0.97–0.99, recall 0.75), thereby linking patients’ EHR, claims, and death data. Another unique feature is the establishment of mother-baby relationships via Florida vital statistics data. Research usage has been significant, including major studies launched in the National Patient-Centered Clinical Research Network (“PCORnet”), where OneFlorida is 1 of 9 clinical research networks. The Data Trust’s robust, centralized, statewide data are a valuable and relatively unique research resource. |
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| Keywords: | Clinical Data Research Network data warehouse data quality data management data analysis |
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