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Attitudes of genetic clinicians in Wales to the future development of cancer genetics services
Authors:Iredale Rachel  Elwyn Glyn  Edwards Adrian  Gray Jonathon
Institution:Institute of Medical Genetics, School of Medicine, Cardiff University, Heath Park, Cardiff, UK. Rachel.Iredale@cardiffandvale.wales.nhs.uk
Abstract:RATIONALE: Cancer genetics is one of the fastest-growing areas of clinical genetics and it is imperative to identify how services should be organized and delivered in the future. METHODS: A qualitative study utilizing focus group methodology which explored the attitudes of clinicians working in the Medical Genetics Service for Wales to a number of possible models for future service delivery. RESULTS: There was no consensus for any particular model. Greater involvement of primary care practitioners is anticipated, but this requires investment in information, education and professional development initiatives. Self-referrals were not encouraged, though the promotion of genetic literacy amongst the general population was supported, particularly in conjunction with pharmacists. CONCLUSION: As demand for cancer genetics services continues to increase, some consensus about the future delivery of such services is necessary. Consultation with other stakeholder groups, especially primary care practitioners and patients, should also contribute to service planning.
Keywords:cancer genetics  focus groups  health services  Wales
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