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Cultural considerations in the care of children with spina bifida
Authors:Smith Kathryn  Freeman Kurt A  Neville-Jan Ann  Mizokawa Stacey  Adams Elizabeth
Affiliation:a Department of Pediatrics, University Center for Excellence in Developmental Disabilities, University of Southern California, 4650 Sunset Boulevard, MS #53, Los Angeles, CA 90027, USA
b Division of General Pediatrics, Spina Bifida Center, Childrens Hospital Los Angeles, 4650 Sunset Boulevard, MS #53, Los Angeles, CA 90027, USA
c Department of Pediatrics, Keck School of Medicine USC, 4650 Sunset Boulevard, MS #53, Los Angeles, CA 90027, USA
d Division of Psychology, Child Development & Rehabilitation Center, Oregon Health & Science University, PO Box 574, Portland, OR 97207-0574, USA
e Department of Occupational Science & Occupational Therapy, University of Southern California, 1540 Alcazar Street, CHP-133, Los Angeles, CA 90089, USA
f Division of General Pediatrics, University Center for Excellence in Developmental Disabilities, Childrens Hospital Los Angeles, University of Southern California, 4650 Sunset Boulevard, MS #53, Los Angeles, CA 90027, USA
g Department of Public Health and Preventive Medicine, Oregon Health & Science University, 707 SW Gaines Road, Portland, OR 97239, USA
Abstract:Spina bifida occurs when the neural tube fails to close during early fetal development, resulting in a range of neural tube defects (NTDs). The cause of spina bifida is not fully understood, but scientists believe that NTDs are the result of genetic and environmental factors acting simultaneously. The Centers for Disease Control reports that spina bifida and other NTDs occur more frequently in some ethnic groups, such as Hispanic people, than in others. The United States is increasingly multicultural and diverse, and it is becoming more difficult to categorize individuals into a single racial/ethnic group. This article uses the term ethnicity as defined by the Institute of Medicine and avoids using race unless part of a particular study.
Keywords:Spina bifida   Culture   Latin American   Hispanic   Folic acid   Neural tube defects
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