Health-related quality of life evaluation by proxy in Parkinson's disease: approach using PDQ-8 and EuroQoL-5D. |
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Authors: | Pablo Martínez-Martín Julián Benito-León Fernando Alonso Maria José Catalán Margarita Pondal Ivana Zamarbide |
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Affiliation: | Neuroepidemiology Unit, National Centre for Epidemiology, Carlos III Institute of Public Health, Madrid, Spain. pmartinez@isciii.es |
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Abstract: | Patient- and caregiver-based scores were compared and agreement levels ascertained to determine the reliability of proxy evaluation of Parkinson's Disease (PD) patients' health-related quality of life (HRQoL) using the EuroQoL and PD questionnaire (PDQ)-8. Of 72 patient-caregiver pairs, 64 (88.88%) returned the questionnaires. The degree of agreement varied for individual dimensions. Proxy evaluation of PD patients' HRQoL showed limitations mainly with assessments using the EuroQoL and especially in patients with severe disease and depression. |
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Keywords: | Parkinson's disease health‐related quality of life proxy evaluation EuroQoL PDQ‐8 |
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