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Health-related quality of life evaluation by proxy in Parkinson's disease: approach using PDQ-8 and EuroQoL-5D.
Authors:Pablo Martínez-Martín  Julián Benito-León  Fernando Alonso  Maria José Catalán  Margarita Pondal  Ivana Zamarbide
Affiliation:Neuroepidemiology Unit, National Centre for Epidemiology, Carlos III Institute of Public Health, Madrid, Spain. pmartinez@isciii.es
Abstract:Patient- and caregiver-based scores were compared and agreement levels ascertained to determine the reliability of proxy evaluation of Parkinson's Disease (PD) patients' health-related quality of life (HRQoL) using the EuroQoL and PD questionnaire (PDQ)-8. Of 72 patient-caregiver pairs, 64 (88.88%) returned the questionnaires. The degree of agreement varied for individual dimensions. Proxy evaluation of PD patients' HRQoL showed limitations mainly with assessments using the EuroQoL and especially in patients with severe disease and depression.
Keywords:Parkinson's disease  health‐related quality of life  proxy evaluation  EuroQoL  PDQ‐8
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