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Longitudinal screening and management of fatigue,pain, and emotional distress associated with cancer therapy
Authors:Zeeshan Butt  Lynne I Wagner  Jennifer L Beaumont  Judith A Paice  Joshua L Straus  Amy H Peterman  George Carro  Jamie H Von Roenn  Dan Shevrin  David Cella
Institution:(1) Center on Outcomes, Research and Education (CORE), Evanston Northwestern Healthcare, 1001 University Place, Suite 100, Evanston, IL 60201, USA;(2) Department of Psychiatry and Behavioral Sciences, Feinberg School of Medicine, Northwestern University, 446 E. Ontario Avenue, Suite 7-200, Chicago, IL 60611, USA;(3) Institute for Healthcare Studies, Feinberg School of Medicine, Northwestern University, 676 N. St. Clair Street, Suite 200, Chicago, IL 60610, USA;(4) Division of Hematology/Oncology, Feinberg School of Medicine, Northwestern University, 303 E. Superior Street, Lurie 5th Floor, Chicago, IL 60611, USA;(5) Department of Psychology, University of North Carolina at Charlotte, 9201 University City Boulevard, Charlotte, NC 28223, USA;(6) Kellogg Cancer Care Center, Evanston Northwestern Healthcare, 2650 Ridge Avenue, Evanston, IL 60201, USA
Abstract:Goals of work Fatigue, pain, and emotional distress are common symptoms among patients with cancer. We sought to learn about patient perceptions of these symptoms and their treatment. Materials and methods At a baseline assessment and two monthly follow-up assessments, we asked a diverse sample of patients with solid tumor or lymphoma (N = 99) about their fatigue, pain and distress, their treatment for these symptoms, and their satisfaction with treatment via standardized questionnaires and semistructured interviews. Main results In this observational study, patients reported fatigue, pain, emotional distress, and general quality of life at expected levels. Across all assessments, at least half of our sample experienced at least some fatigue, pain, or distress. On the whole, patients and providers do communicate about these concerns, and at least 75% of patients found these discussions helpful when they occurred. Conclusions Improved symptom identification and communication may optimize the detection of those at risk of morbidity and decreased quality of life because of excess symptom burden.
Keywords:Symptom management  Screening  Quality of life  Communication
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