Nonpharmacologic Interventions for Family Caregivers of People Living With Dementia in Latin-America: A Scoping Review |
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| Institution: | 1. Department of Social and Behavioral Sciences (JMA), Yale University School of Public Health, New Haven, CT;2. Instituto de Investigación y Postgrado Facultad de Ciencias de la Salud (JMA), Universidad Central de Chile, Santiago, Chile;3. Facultad de Ciencias para el Cuidado de la Salud (JG), Universidad San Sebastián, Santiago, Chile;4. Department of Occupational Therapy and Occupational Science (JG), University of Chile, Santiago, Chile;5. Public Nutrition Unit, The Nutrition and Food Technology Institute (INTA) (RS), University of Chile, Santiago, Chile;6. Department of Psychiatry and Behavioral Sciences (LH), University of California Davis School of Medicine, Sacramento, CA;7. College of Nursing and Health Professions (LNG), Drexel University, Philadelphia, PA;8. Center for Innovative Care in Aging (LNG), Johns Hopkins University, Baltimore, MA;1. Weill Cornell Medicine (DS), Department of Medicine, Division of Geriatrics and Palliative Care, New York, NY;2. Weill Cornell Medicine (DS), Department of Psychiatry, New York, NY;3. Columbia University (SC, JL, HP), Department of Psychiatry, New York, NY;4. New York State Psychiatric Institute (BSR, HP), New York, NY;5. National Hospice and Palliative Care Organization (LB), Alexandria, Virginia;1. Yale School of Medicine, Department of Psychiatry;2. Yale Program in the History of Science and Medicine;1. Social Gerontology Division (KVT, THD, TAN), National Ageing Research Institute, Melbourne, VIC, Australia;2. UniSA: Clinical and Health Sciences (KVT, AE, ER, TAN), University of South Australia, Adelaide, SA, Australia;3. College of Economics (YS), Nihon University, Tokyo, Japan;4. Senior Advisor on Population Ageing (YS), Economic Research Institute for ASEAN and East Asia, Jakarta, Indonesia;5. Centre for Healthy Brain Ageing (HB), The University of New South Wales, Sydney, NSW, Australia;6. Institute of Population, Health and Development (NCV, LTD), Hanoi, Vietnam;7. School of Health Sciences (THD, TAN), Swinburne University of Technology (THD, TAN), Melbourne, VIC, Australia;8. Melbourne School of Population and Global Health (HM), University of Melbourne, Melbourne, VIC, Australia;9. Health Strategy and Policy Institute (TAN), Ministry of Health of Vietnam, Hanoi, Vietnam |
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| Abstract: | ObjectiveDementia prevalence in Latin America (LATAM) is rapidly increasing, contributing to significant family burden. As families are responsible for care, supportive interventions are critical. To understand the state-of-the-science, a scoping review was conducted of non-pharmacologic interventions for caregivers of people living with dementia (PLWD) in LATAM.DesignEight databases were searched (PubMed, Embase, PsycINFO, Scopus, Scielo, Lilacs, Redalyc, Google Scholar) for nonpharmacological intervention studies published up to July, 2021 in LATAM reporting at least 1 caregiver outcome. A qualitative synthesis examined study designs, participants, and outcomes characteristics.ResultsForty-five studies were identified from 25.8% (n = 8/31) of LATAM countries (28 = Brazil, 4 = Chile, 4 = Cuba, 4 = México, 2 = Colombia, 1 = Perú, 1 = Ecuador, 1 = Argentina): 29% (n = 17) were randomized clinical trials (RCT), 7% (n = 3) nonrandomized comparison trials, 42% (n = 19) pre-post trials, 9% (n = 4) postintervention analyses, and 4% (n = 2) single case studies, comprising a total of 1,171 caregivers and 817 PLWD. For 20 RCT and nonrandomized comparison trials, 31 interventions were tested of which 48.4% (n = 15) targeted caregivers and 32.3% (n = 10) dyads. Most studies involved daughters with less than 12 years of education and tested multicomponent interventions involving disease education (90%), and cognitive behavioral coping (45%). Half of interventions (51.6%; n = 16/31) tested were adapted from other countries, and reported benefits for caregiver depression, quality of life, and burden.ConclusionStudies were conducted in a limited number of LATAM countries and few were RCTs. Results of RCTs showed benefits for socially vulnerable caregivers on psychosocial outcomes. There is an urgent need to rigorously evaluate more country/culturally specific interventions addressing unmet familial needs beyond psychosocial support. |
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| Keywords: | Alzheimer Disease Rehabilitation research Social determinants of health Global Health Psychotherapy |
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